1. < Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

CAR-T - Looking for statistical data for over 70 age group

Posted by joefmsi2020 @joefmsi2020, Oct 18, 2022

After being told this January that my cancer was back (after 20 years of remission) I have undergone several months of chemo. Unfortunately, the cancer has been resistant but my oncologist is suggesting CAR-T. I have tried to find out if results are good for my age group but cannot find much statistically. I will be meeting with the oncology group soon (after having results from last scan). Does anyone know of any statistical data out there for over 70 age group? Thanks in advance.

Interested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.

Mentor
Lori, Volunteer Mentor | @loribmt | Jul 2, 2024
In reply to @ntsimpson "My husband has CLL. He has just rejected a fourth line treatment." + (show)
@ntsimpson

My husband has CLL. He has just rejected a fourth line treatment.

Jump to this post

Hi @ntsimpson, I just wanted to check in with you to see how your husband is doing. I know rejecting treatment is a huge personal decision that impacts not only your husband, but you and your family as well. Has your husband reconsidered? Has his doctor been able to offer another option for him? And…how are you coping as the caregiver?

REPLY
1 reply
ntsimpson | @ntsimpson | Apr 7, 2024
In reply to @loribmt "While you’re waiting for other members who have experience with CAR T thereapy to respond, I’d..." + (show)
@loribmt

While you’re waiting for other members who have experience with CAR T thereapy to respond, I’d like to welcome to Connect, @ntsimpson. Are there any specific questions that you have? What illness has led your husband to be needing CAR T?

Jump to this post

My husband has CLL. He has just rejected a fourth line treatment.

REPLY
1 reply
Mentor
Lori, Volunteer Mentor | @loribmt | Apr 3, 2024
In reply to @ntsimpson "Hello Joe, I am brand new to this site. I am reading all the most up..." + (show)
@ntsimpson

Hello Joe,
I am brand new to this site. I am reading all the most up to date posts. Did you undergo CAR T? And, how are you now? My husband will be taking part in a CAR T clinical trial soon.
Thank you,
Nancy Simpson

Jump to this post

While you’re waiting for other members who have experience with CAR T thereapy to respond, I’d like to welcome to Connect, @ntsimpson. Are there any specific questions that you have? What illness has led your husband to be needing CAR T?

REPLY
1 reply
ntsimpson | @ntsimpson | Apr 3, 2024
In reply to @joefmsi2020 "I don’t know of an online “education” program. I do know there are some basic outlines..." + (show)
@joefmsi2020

I don’t know of an online “education” program. I do know there are some basic outlines and videos that explain the process.

One that was helpful to me was: lls.org/patient-education-videos/car-t-cell-therapy

There is another site for a specific CAR T treatment. As I understand it, there are different versions of CAR T. This is the one I will be using for my condition:

breyanzi.com/

Hope this helps.

Best of luck.o

Joe

Jump to this post

Hello Joe,
I am brand new to this site. I am reading all the most up to date posts. Did you undergo CAR T? And, how are you now? My husband will be taking part in a CAR T clinical trial soon.
Thank you,
Nancy Simpson

REPLY
1 reply
Bob, Alumni Mentor | @grandpabob | Jan 13, 2023
In reply to @taylaroleary "My husband was diagnosed with multiple myeloma stage 3 09/2020. His oncologist said his was the..." + (show)
@taylaroleary

My husband was diagnosed with multiple myeloma stage 3 09/2020. His oncologist said his was the most aggressive myeloma she has ever seen. He would likely get 2 years vs the 5 year survival rate. CarT did work and gave him the best 4 months we got to take our last vacation with our kids he was only 47. But it did work and worked fast but his cancer was just too strong. He fought hard . I wish u the best but car t cell def worked the only question is how long, but it gave him an amazing healthy 4 months and we were in the hospital 8 out of the 13 months

Jump to this post

Hello @taylaroleary - I am sorry for your loss, so glad to hear that Car T added time and comfort for your family. It is so unfortunate that medications and treatments are not always 100% effective.

Is your family close by for support

REPLY
taylaroleary | @taylaroleary | Jan 11, 2023
In reply to @raemark "I had CAR-10 when I was 67. I'm now 69. I assume I'm not a CAR-T..." + (show)
@raemark

I had CAR-10 when I was 67. I'm now 69. I assume I'm not a CAR-T candidate because I've already had it. Is that correct?

Jump to this post

that is true from what my husband’s oncologist said once the cells are in there they will continue to work or the cancer will eventually stop them from
working .
CAR T-cell therapy is a “living drug” and intended to remain in the body fighting cancer. For most people, CAR T is a one-time treatment and the T cells remain in the body for months and years.

REPLY
taylaroleary | @taylaroleary | Jan 11, 2023

My husband was diagnosed with multiple myeloma stage 3 09/2020. His oncologist said his was the most aggressive myeloma she has ever seen. He would likely get 2 years vs the 5 year survival rate. CarT did work and gave him the best 4 months we got to take our last vacation with our kids he was only 47. But it did work and worked fast but his cancer was just too strong. He fought hard . I wish u the best but car t cell def worked the only question is how long, but it gave him an amazing healthy 4 months and we were in the hospital 8 out of the 13 months

REPLY
1 reply
raemark | @raemark | Nov 5, 2022
In reply to @grandpabob "Hello @raemark - I would suggest that you ask your health care team this question. There..." + (show)
@grandpabob

Hello @raemark - I would suggest that you ask your health care team this question. There was nothing to indicate in my searches that a person could not undergo the treatment a second time, though I did not find anything that promoted a second treatment.

I see it has been some time since you last posted, how are you doing?

Jump to this post

Thanks for your message. That's good counsel you've given; thanks. We meet with a radiologist this coming week at Mayo. Thanks again. Mark W

REPLY
joefmsi2020 | @joefmsi2020 | Nov 4, 2022
In reply to @grandpabob "Hello Joe, I just want to drop you a note and wish you well on Monday..." + (show)
@grandpabob

Hello Joe, I just want to drop you a note and wish you well on Monday as you start your process with CAR T. I will be thinking about you on Monday as I found this first step exciting. Wishing you the best!!

Jump to this post

Thank you Bob

REPLY
Bob, Alumni Mentor | @grandpabob | Nov 3, 2022
In reply to @joefmsi2020 "Bob, Thank you for the information. My biggest concern is the side affects you refer to...." + (show)
@joefmsi2020

Bob,

Thank you for the information. My biggest concern is the side affects you refer to. Seem as though that is the biggest risk and concern.

With regard to when it would all start, the doctors are telling me that Nov. 7th would be the first day of the actual process (harvesting). Other than that the schedule has not been finalized at this point. “Team Joe” and I will be going to the CAR T education process on 10/26.

Jump to this post

Hello Joe, I just want to drop you a note and wish you well on Monday as you start your process with CAR T. I will be thinking about you on Monday as I found this first step exciting. Wishing you the best!!

REPLY
1 reply
View MoreView Less
Please sign in or register to post a reply.