1. < CAR-T Cell Therapy

CAR-T - Looking for statistical data for over 70 age group

Posted by joefmsi2020 @joefmsi2020, Oct 18, 2022

After being told this January that my cancer was back (after 20 years of remission) I have undergone several months of chemo. Unfortunately, the cancer has been resistant but my oncologist is suggesting CAR-T. I have tried to find out if results are good for my age group but cannot find much statistically. I will be meeting with the oncology group soon (after having results from last scan). Does anyone know of any statistical data out there for over 70 age group? Thanks in advance.

Interested in more discussions like this? Go to the CAR-T Cell Therapy Support Group.

Bob, Alumni Mentor | @grandpabob | Jan 13, 2023
In reply to @taylaroleary "My husband was diagnosed with multiple myeloma stage 3 09/2020. His oncologist said his was the..." + (show)
@taylaroleary

My husband was diagnosed with multiple myeloma stage 3 09/2020. His oncologist said his was the most aggressive myeloma she has ever seen. He would likely get 2 years vs the 5 year survival rate. CarT did work and gave him the best 4 months we got to take our last vacation with our kids he was only 47. But it did work and worked fast but his cancer was just too strong. He fought hard . I wish u the best but car t cell def worked the only question is how long, but it gave him an amazing healthy 4 months and we were in the hospital 8 out of the 13 months

Jump to this post

Hello @taylaroleary - I am sorry for your loss, so glad to hear that Car T added time and comfort for your family. It is so unfortunate that medications and treatments are not always 100% effective.

Is your family close by for support

REPLY
ntsimpson | @ntsimpson | Apr 3 7:05am
In reply to @joefmsi2020 "I don’t know of an online “education” program. I do know there are some basic outlines..." + (show)
@joefmsi2020

I don’t know of an online “education” program. I do know there are some basic outlines and videos that explain the process.

One that was helpful to me was: lls.org/patient-education-videos/car-t-cell-therapy

There is another site for a specific CAR T treatment. As I understand it, there are different versions of CAR T. This is the one I will be using for my condition:

breyanzi.com/

Hope this helps.

Best of luck.o

Joe

Jump to this post

Hello Joe,
I am brand new to this site. I am reading all the most up to date posts. Did you undergo CAR T? And, how are you now? My husband will be taking part in a CAR T clinical trial soon.
Thank you,
Nancy Simpson

REPLY
1 reply
Mentor
Lori, Volunteer Mentor | @loribmt | Apr 3 7:31am
In reply to @ntsimpson "Hello Joe, I am brand new to this site. I am reading all the most up..." + (show)
@ntsimpson

Hello Joe,
I am brand new to this site. I am reading all the most up to date posts. Did you undergo CAR T? And, how are you now? My husband will be taking part in a CAR T clinical trial soon.
Thank you,
Nancy Simpson

Jump to this post

While you’re waiting for other members who have experience with CAR T thereapy to respond, I’d like to welcome to Connect, @ntsimpson. Are there any specific questions that you have? What illness has led your husband to be needing CAR T?

REPLY
1 reply
ntsimpson | @ntsimpson | Apr 7 9:24am
In reply to @loribmt "While you’re waiting for other members who have experience with CAR T thereapy to respond, I’d..." + (show)
@loribmt

While you’re waiting for other members who have experience with CAR T thereapy to respond, I’d like to welcome to Connect, @ntsimpson. Are there any specific questions that you have? What illness has led your husband to be needing CAR T?

Jump to this post

My husband has CLL. He has just rejected a fourth line treatment.

REPLY
View MoreView Less
Please sign in or register to post a reply.