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CAR-T Cell Therapy: Introduce yourself and connect with others
Welcome to the CAR-T Cell Therapy group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people who have experience with CAR-T cell therapy or are caring for someone on CAR-T cell therapy. There are so few people who have experience with this new cancer immunotherapy. Together we can learn from each other, support one another and share stories about living with cancer and coping with the challenges of treatment.
Let’s chat. Why not start by introducing yourself? When did you or your family start therapy? How are you doing today?
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HugInterested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.
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@4health4bonnie What a wonderful update!! 💃💃💃
So happy to hear you’re almost ‘back to normal’ after 6 months! That’s fantastic and a testimony to the amazing breakthroughs in medical treatments. I know you were so concerned about having undergo CAR-T therapy but what a wonderful outcome for you!
Reaching through the screen for a big hug!! I know that feeling of elation! How often do you have follow-up appointments??
Magical isn't it. I am 22 months out from CAR T and feeling great. My last IVIG infusion was in April or May(time flies. Note that I took a reaction to my first IVIG. Subquently they loaded me up on antihistimines, anti nausea drugs and prednisone. I have not reacted since. I understand that this is very rare. Good luck and best wishes for continued good health!
@loribmt Every two months, although I am starting infusions monthly for low IGG. (IVIG). Thank you for your suport.😊
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