CAR-T Cell Therapy: Introduce yourself and connect with others

Welcome to the CAR-T Cell Therapy group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people who have experience with CAR-T cell therapy or are caring for someone on CAR-T cell therapy. There are so few people who have experience with this new cancer immunotherapy. Together we can learn from each other, support one another and share stories about living with cancer and coping with the challenges of treatment.

Let’s chat. Why not start by introducing yourself? When did you or your family start therapy? How are you doing today?

@greta_k

Hello fellow CAR-T patients and caregivers,

My name is Greta. My husband and I are from Michigan and getting ready for CAR T cell therapy. Colleen gave us a great introduction to the Mayo Connect last week. We are grateful for any support, knowledge, and/or advice you can give us prior to his T cell infusion next week. The wonderful team here at Mayo has given us a lot of information before we start this critical phase in the process but it would be great to have your patient/caregiver perspective. Thanks in advance for any advice you can provide.

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hello to you. Is this cartcell therapy for a solid tumor?

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Alisha, you can see all your posts in your profile here https://connect.mayoclinic.org/member/00-2a3b9d7d0b49df9c245222/activity/comments/

To get to your profile, click your profile picture in the upper right corner or your @username beside any of your posts.

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I would be interested in knowing how CAR-T Cell patients are reacting to the shots for COVID 19 or anyone who has had COVID.

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Hello @smokie – good to see you once again. I had the Phizer vaccine, I had a mild reaction to the first dose, tired, headache for about a day, with the second dose, I had no reaction at all. I also had an antibody test, there was an excellent number visible. Of course, this does not mean I am safe from infection. I am comfortable the vaccine works, however I continue to be extra diligent when I am out and about in public.

Did Greg have any reaction?

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@grandpabob

Hello @smokie – good to see you once again. I had the Phizer vaccine, I had a mild reaction to the first dose, tired, headache for about a day, with the second dose, I had no reaction at all. I also had an antibody test, there was an excellent number visible. Of course, this does not mean I am safe from infection. I am comfortable the vaccine works, however I continue to be extra diligent when I am out and about in public.

Did Greg have any reaction?

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Sounds about the same. Doing well – lots of golf and Grandkids!

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