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CAR-T Cell Therapy: Introduce yourself and connect with others
Welcome to the CAR-T Cell Therapy group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people who have experience with CAR-T cell therapy or are caring for someone on CAR-T cell therapy. There are so few people who have experience with this new cancer immunotherapy. Together we can learn from each other, support one another and share stories about living with cancer and coping with the challenges of treatment.
Let’s chat. Why not start by introducing yourself? When did you or your family start therapy? How are you doing today?
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HugInterested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.
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Unfortunately the Car-t failed and the cancer has progressed and new tumors..She is currently in ICU on a ventilator and no treatment plan. Seems all failed her..Chemo, Radiation, Car-T , Steroids, praying she can come off the vent and get some sort of treatment..anyone have any advise it would appreciated,
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1 ReactionI'm looking for studies on Car-T or other antibody treatment for ovarian cancer- high serous? I've read that Car-T is not being used on solid tumors but recently heard of a very small study in Australia. Anything in the States? Treatments in addition to taxol and carboplatin?
Hello, I am currently not receiving any cancer treatments. Just a PET scan every 6-8 months to keep an eye on things. I feel lucky and blessed beating cancer twice now. Thank goodness for CAR-T
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2 ReactionsHello everyone,
I have stage 2 multiple myeloma and will be starting a clinical trial for Car T-cell therapy. I have not yet started any treatment and will not know for a a while if I will be randomized to received the Car T-cell therapy. I will be following along on this site and updating as I progress. Good luck to all!
pgollinger
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1 ReactionHello @henry55 welcome to mayo Clinic Connect.
I am so glad you are doing well and thank you for sharing your experience with Car T treatment. I get super excited when I hear those words “cancer free”. The path of cancer treatment is not an easy one so it is great to hear from people who have had a successful walk down that path. Hurray for the doctors and scientists and you!
Are you currently receiving any follow up treatments like IVIG infusions?
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1 ReactionHello I'm Henry. I went through car-t cell therapy September 2022 at UCLA. This was my second boutique with cancer. I was first diagnosed with Hodgkins lymphoma in 2015. Then I was diagnosed with non- Hodgkins lymphoma in 2022. It's been a long road but I'm told I'm cancer free. I feel so greatfull for car-t treatment because I'm doing well these days.
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2 ReactionsHi @bobby2021, you can contact Mayo Clinic Clinical Research to inquire about the availability of clinical trials available to you.
https://www.mayo.edu/research/clinical-trials
Phone: 855-776-0015 (toll-free)
Sorry to hear that you’re experience a relapse after having gone through BMT. How long ago was the BMT? How are you doing?
Are there any clinical trials for relapsed Acute lymphoblastic leukemia (ALL) after bone marrow/stem cell transplant?
Hi Colleen
Thank you so much for your reply. Yes very worried as now biopsy is scheduled for Jan 31 so we must wait and meeting with her oncologist is on Feb 6. Of course we would have loved CR but praying this new mark is a blood clot or anything but recurrence. Hoping this part remission stays stable but her oncologist considers Car-T a failure but also considers her R-Chop 7 years ago a failure as her cancer came back.
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1 Reaction@363, it sounds like treatment is working for your sister with tumors shrinking and even disappearing. I know that worry sets in quickly when there is an anomoly on a PET scan. Has she had the biopsy in the meantime? What were the results?