For the last 6 weeks my dad has been traveling to and from Mayo to get his diagnosis and pretesting all done – it's 1200 miles from his home and he's almost 80. Every time he goes, he's given a schedule for his treatment and by the time he gets home, it's been totally canceled except for his next appointment – they usually can't even give him a time until he's less than 24 hours out. Is this normal??? He just can't afford to sit in a hotel 4-5-6 days between treatments. Today, we managed to get through to the Doctor's assistant who told us "if he doesn't like it, we can push him out until February". It felt like a threat!
We were told the doctor alone can schedule him – and cancel his appointments. Why would the doctor make an appointment, then cancel it without talking to us first??
Is there any kind of patient advocate or someone who can help us navigate this problem or explain to us why he can't get scheduled?
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