Can't get an appointment: Any tips on what to do?

Posted by radiocity @radiocity, Jul 2, 2021

Over a year trying to get an appointment, Scottsdale/Phoenix. I have two issues that may or may not be related. 5 'regular' doctors and 2 years later reveals what are likely lumbar spinal issues, but none of them can account for an issue in my left abdominal area. Last Doc I saw sent referral to Mayo, April 2020. Mayo says 2-3 years to establish primary care. I asked for an appt (internal medicine, interns, anyone at this point) for a comprehensive physical, to basically start over, but I keep getting rejected. I don't understand.

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@yourefine220

Appointment denied – do I have any options?
Really just need to rant or get some advice. I know I'm not entitled to an appointment. I should have realized it was a long shot. But after 3 years of chronic pain and other issues, over a dozen different specialists and always being told that "you're fine" I sent in an application to be seen by the internal medicine team at mayo. I finally had some hope, and thought that a brilliant doctor would look over my records and symptoms and think of something they could do to help. In less than 48 hours, I got an email that "we are unable to offer you an appointment at this time." That's it. No "we'll keep your info for later." Or apply to another location. I called the appointment line to get clarification and was told that someone essentially took one look at my myriad of symptoms (that I noted may or may not be related) and decided that "oh nah that's too much to deal with".

Really what she said was they wrote that "They won't be able to meet my expectations." What expectations? What does that even mean? What are anyones expectations when they see a doctor? To see if they can help with a diagnosis or different treatment plan. It's not like I said that I want them to cure me. At this point with my illness I just want to know why I went from a healthy 27 year old to disabled and in constant pain in less than an year OR what I can do about it. I just need help. I'm so depressed being told by doctors that they can't help me. That I'm just doomed to be in pain and maybe get worse, maybe not. I'm trying to plan a wedding and in a year I don't even know if I'll be able to walk down the aisle on my own.

The lady I spoke with said the denial is effective for 6 months. Can i even apply to another location? Or will they just toss out the 50 pages of medical records that I know they retrieved from my other doctors and didn't even look at. Because my case looks too complicated? I can't even express how disappointed I am. Helping someone who cant get help elsewhere is literally the point. If one of the best teams can't even bother to read my case and give it a few seconds of thought, what else am I supposed to do? Of all the doctors who have dismissed me I really didn't think that would happen here so blatantly.

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@yourefine220, I have to say, you have expressed yourself very calmly for being so disappointed. I bet you're feeling less calm and polite inside. Being denied an appointment when you invested so much hope in Mayo Clinic is a real blow. So let me start by saying, I get that. Unfortunately, Mayo Clinic gets more requests than appointments available. This seems to be the case every where these days.

You asked "do I have any options?" I believe you do. I moved your message to this existing discussion where others have shared tips that may apply to your situation.

– Can't get an appointment: Any tips on what to do? https://connect.mayoclinic.org/discussion/cant-get-an-appointment/

If you choose to apply at another location, talk to the scheduler and the great questions you ask in your post.

Some other options to consider include:
– Mayo Clinic Pain Rehabilitation Center: https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691

This may be an approach you haven't considered. You can connect with other members who have been through the program here:
– Questions about Mayo Clinic Pain Rehab Center https://connect.mayoclinic.org/discussion/status-of-mayo-clinic-pain-rehab-program/

Another considerations is the Mayo Clinic Care Network
The Mayo Clinic Care Network is a select group of independent health systems that are granted special access to Mayo Clinic's extensive knowledge and world-leading medical expertise. The Mayo Clinic Care Network helps keep care local by providing guidance and answers to many questions that might otherwise require a referral to a specialist. See the member hospitals here:
– Mayo Clinic Care Network https://www.mayoclinic.org/about-mayo-clinic/care-network/members

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Hi, so sorry. Are u able to get a referral from your Dr. to see someone at Mayo. Have u ever been given a diagnosis.

Good luck and I hope u find some help u r so young..

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To begin, I do not mean to sound negative but the modern day health care system is leaving a very bitter taste in my mouth. In recent years, Honor health system has repeatedly referred me to infectious disease doctors however, I have been told they are not accepting new patients. I reached out to Mayo multiple times and have had Honor as well as a specialist I paid for out of pocket refer me to Mayo because they simply can not find a solution to my issues. I have metal poisoning, Lyme, celiac disease, 5 strains of Coxsacki and my Epstein bar level is in the 500’s. I have extreme fatigue for years, tinnitus, vertigo and my cognitive functions are slowly but steadily declining. My short term memory is becoming non existent. There are days I am bed ridden and tests have shown I have said issues. And again, Mayo declined treatment. Even with all the proper referrals and records. I am strongly considering hiring my attorney and filing a suit as with all the evidence pointing to the proof that I need serious help, they have refused to provide medical attention multiple times.

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@jamcousi9

To begin, I do not mean to sound negative but the modern day health care system is leaving a very bitter taste in my mouth. In recent years, Honor health system has repeatedly referred me to infectious disease doctors however, I have been told they are not accepting new patients. I reached out to Mayo multiple times and have had Honor as well as a specialist I paid for out of pocket refer me to Mayo because they simply can not find a solution to my issues. I have metal poisoning, Lyme, celiac disease, 5 strains of Coxsacki and my Epstein bar level is in the 500’s. I have extreme fatigue for years, tinnitus, vertigo and my cognitive functions are slowly but steadily declining. My short term memory is becoming non existent. There are days I am bed ridden and tests have shown I have said issues. And again, Mayo declined treatment. Even with all the proper referrals and records. I am strongly considering hiring my attorney and filing a suit as with all the evidence pointing to the proof that I need serious help, they have refused to provide medical attention multiple times.

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Hi @jamcousi9, like you said, there is a strain in our health care system nation wide. Like other hospitals, Mayo Clinic has more requests for appointments than available openings. That said, members offer tips on getting appointments in this related discussion:
– Can't get an appointment: Any tips on what to do? https://connect.mayoclinic.org/discussion/cant-get-an-appointment/

Another possibility for you may be to request an appointment with an institution that is part of the Mayo Clinic Care Network.

The Mayo Clinic Care Network is a select group of independent health systems that are granted special access to Mayo Clinic's extensive knowledge and world-leading medical expertise. The Mayo Clinic Care Network helps keep care local by providing guidance and answers to many questions that might otherwise require a referral to a specialist. See the member hospitals here:
– Mayo Clinic Care Network https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members

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@colleenyoung

Hi @jamcousi9, like you said, there is a strain in our health care system nation wide. Like other hospitals, Mayo Clinic has more requests for appointments than available openings. That said, members offer tips on getting appointments in this related discussion:
– Can't get an appointment: Any tips on what to do? https://connect.mayoclinic.org/discussion/cant-get-an-appointment/

Another possibility for you may be to request an appointment with an institution that is part of the Mayo Clinic Care Network.

The Mayo Clinic Care Network is a select group of independent health systems that are granted special access to Mayo Clinic's extensive knowledge and world-leading medical expertise. The Mayo Clinic Care Network helps keep care local by providing guidance and answers to many questions that might otherwise require a referral to a specialist. See the member hospitals here:
– Mayo Clinic Care Network https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members

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Good morning,

I have tried multiple times for over two years. Calls, referrals etc… I understand that there are issues with over population/booking but i’d like to think there can be at least a waiting list. It’s not like I have a case of Covid, I have legitimate health issues.

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@radiocity

I have been diagnosed, via imaging and eval, with numerous herniated disks and bone spurs. Foot numbness for almost two years, left leg starting to weaken. Also have abdominal numbness and tightness/pressure. 2 CT scans, 3 MRIs, endless XRays. Three spinal injections, no relief. I've seen a neurologist and orthopedic surgeon, neither of whom could move forward with a comfortable degree of confidence. Had colonoscopy, all clear. Nobody even guesses at the cause of the abdominal issue so I'm hoping Mayo would 'start over'. Anyone I see at this point will want new images so not sure how far the old ones will get me. Thanks for the links, I'll look into these.

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I have been a patient of Mayo for 30 years now (thorough multiple treatments and conditions) and believe it is worth every effort to get into the Mayo system. I also work with an organization called Angel Flight East that matches patients with volunteer pilots. They limit the flights to 1.000 miles but all flight costs are paid by the pilots and there is no limit on the number of times a patient can fly. I don't know if that opens up the possibility of travelling to another Mayo location (and therefore acceptance as a Mayo patient) for you, but if so, you may want to consider reaching out to them. Good luck.

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