Looking for Others with Brain Tumors

Posted by Buffy1 @buffy1, Jul 7, 2011

Brain tumors? Is there anyone out there that is dealing with a brain tumor?

Interested in more discussions like this? Go to the Brain Tumor Support Group.

@georgiaclaire

Yes, I just had a hemangioma the size of a grapefruit removed last November. It was benign, thank goodness, but it did leave me with some deficits. Unfortunately, I still have two smaller tumors in my skull that they’re monitoring, probably for the rest of my life. My deficits are permanent hearing loss, I’ll never be able to smell or taste food again and because they left some of the large tumor in my head, I have peripheral vision loss in my right eye. My recovery was rough, I had to go PT, OT, speech therapy, etc to get back on my feet. But all in all I’m doing very well. How are you doing overall?

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I had most of my right temporal lobe removed. It was done by a skull base neurosurgeon and other than a hyper sensitive right ear am doing well. Originally told I would be in neuro ICU 4 days, moved to neuro rehab in 1 day. Told to expect 10 day stay. At day 2 exceeded discharge criteria. Not bad for a 73 year old. Now 8 months out. MRIs clean. Brain elasticity allowed normal neuro exams since O.R. Even the chemotherapy has been tolerable. Other than slight nausea after 4 days.

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Anyone have Oligodendroglioma? Mine is stage 3. Had surgery. Did radiation. Now doing chemo(temodar).

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