Cancer cells floating in the chest wall area

Posted by skooter1958 @skooter1958, 2 days ago

Can anyone tell me where I can find more information on cancer cells floating in the chest wall area after four rounds of chemo and a mastectomy? And is this called metastasized?

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@anniez1943

Hi worried 1111. I'm taking Verzenio since December last year, since surgery and radiation. Did you continue to take after 2 years or is 2 years protocol? My dose was lowered from 200mg to 100mg twice daily. Thank you. P.S. I am schocked that you had up to 1.2 million cells removed. OMG . I took 30 rounds of radiation immediately after surgery. So far, so good. Be blessed> Hugs

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I am scheduled to take Verzenio for 2 years - also after surgery and radiation. Since you have been on this drug since DEC may I ask how you are doing (the list of drug reactions is terrifying)? Any tidbits/insight on how you feel/how it is going - I seem to be obsessing/sleepless thinking about how awful I will feel. Appreciate your input!

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30 years after my mastectomy + 6 months of CAF chemo (age 43) & no recurrences, I had a breast MRI that showed a suspicious mass within my chest wall. It was large, about 9cm x 2cm! Without a breast MRI we never would have seen it under the bones.
I was tried on 2 different aromatase inhibitors to attempt to shrink it since it was inaccessable, but they gave me very labile hypertension, so was taken off them after 4 months. Then I was given Fulvestrant shots, another type of hormone blocker that works in a different way. The first month is "front loaded" with 2 shots every 10 days, then once a month after that. I just had my second breast MRI to check for shrinkage of the tumor, and it was reduced by 2/3 of its former size! I could feel little pin prick sensations in the tumor vicinity occasionally, so I'm thinking it was the shrinking going on. Its now 2.8 cam x 1 cm.
The doc is going to bring the images to the "tumor board" to see what's possible now. I'm wondering if it will shrink down with more Fulvestrant to nothingness. But doc says I'll need to stay on it.
Has anyone had surgery for this once it's small?
Thanks all, Patty

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@roseann4z

10 years after a lumpectomy & radiation had recurrence in breast skin & chest wall. Docs wanted chemo since I had already had radiation. Surgeon wanted to get it all out. After tumor board meeting decided to go with big surgery. Tough to recover, many t
Yeats later still scars & side effects but I am here. Cancer still comes up in local lymph nodes but cyberknife & Ibrance keeps it manageable. Hope this helps!

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Is cyberknife like a form of radiation?

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@jardinera25

Is cyberknife like a form of radiation?

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Yes it is targeted to Avery small space. My lymph node was under my collar bone & unreachable by traditional radiation. It is almost like surgery. If you Google cyberknife you’ll get a more detailed explanation.

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@jardinera25

30 years after my mastectomy + 6 months of CAF chemo (age 43) & no recurrences, I had a breast MRI that showed a suspicious mass within my chest wall. It was large, about 9cm x 2cm! Without a breast MRI we never would have seen it under the bones.
I was tried on 2 different aromatase inhibitors to attempt to shrink it since it was inaccessable, but they gave me very labile hypertension, so was taken off them after 4 months. Then I was given Fulvestrant shots, another type of hormone blocker that works in a different way. The first month is "front loaded" with 2 shots every 10 days, then once a month after that. I just had my second breast MRI to check for shrinkage of the tumor, and it was reduced by 2/3 of its former size! I could feel little pin prick sensations in the tumor vicinity occasionally, so I'm thinking it was the shrinking going on. Its now 2.8 cam x 1 cm.
The doc is going to bring the images to the "tumor board" to see what's possible now. I'm wondering if it will shrink down with more Fulvestrant to nothingness. But doc says I'll need to stay on it.
Has anyone had surgery for this once it's small?
Thanks all, Patty

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I had surgery to remove spread to the chest wall. Did not have chemo or drugs to reduce it first but the surgery was successful with no recurrence to chest wall after 15 years. Have had recurrences to lymph node in the area but treat them as they come up. On Ibrance & exemestane

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@worried1111

Two weeks after my mastectomy there was a lump that felt like a bone on my surgery site. It was cancer - recurrence or left behind from initial cancer was never resolved. I had 8 rounds of chemo to shrink it in order to get it out. Second surgery with bad margins. The doctors wanted to go straight to radiation to kill “sanitize “ any cells left behind. I had to fight for surgery. There was up to 1.2 million cancer cells removed in the third surgery with clear margins. Radiation was then used to “sanitize “ the space. The second option from the pathologist saved my life in deciding further surgery or straight to radiation. After radiation I spent 2 years on a CDK (verzenio) because any spread on the chest wall increases the risk of the cancer coming back.

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@worried1111
May I ask how hard is your lump? I had mastectomy 4 months ago and there is a lump that feels like a bone near the scar. I had a clear MRI before the surgery and the lump was there on day one, so I assumed that it’s my bone. Thank you!

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