1. < Osteoporosis & Bone Health

Can you take tymlos and prolia

Posted by burrells5 @burrells5, Jan 10 9:47am

Anyone on tymlos and prolia or switched to tymlos after prolia? I still have 3 months of prolia in me and 3 weeks ago started tymlos. New dr new everything and I don't know whether to trust her or not. I had 6 compression Fractures when I was off prolia for 3 months due to insurance. Will this happen again or will tymlos be a replacement. I also read tymlos doesn't work well after prolia??? She also says no need for blood test that I read lots of people have. No need for follow up dexa. How do I know is working?

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dianeflorida | @dianeflorida | Jan 16 12:13pm
In reply to @burrells5 "Thanks for sharing the video. I literally had to watch it in parts because i got..." + (show)
@burrells5

Thanks for sharing the video. I literally had to watch it in parts because i got so upset. If this is correct, I am really a lost cause. I am 56. I have been on prolia at least 4 years. I still have 3 months before another prolia injection and now the new supposedly "osteo" dr has put me on tymlos, which is reversed sequence. In 3 months she does not want to renew the prolia. Her plan is for me to stay on tymlos 18 mo then back to the prolia. I am so worried. I feel like I am doomed. I really don't know what direction to go. Prior to 3 months ago, I was extremely athletic, hiking, running, walking, and biking around 200 miles a week. Now I can only do short walks or hikes and strength training exercises.

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Find a good endocrinologist who specializes in bones. You should not have to deal with all the misinformation

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burrells5 | @burrells5 | Jan 16 12:37pm

I'm trying to find one but my spine Dr told me limited supply, long wait times , and then they may not know osteoporosis.

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ymv | @ymv | Jan 17 7:13am

I was on Prolia for 2 years. During that time I had a fractured femur, fractured tibia/mallelous and fractured patella. After the last 2 fractures in March 2023, I was referred to an op specialist in Phoenix. He started me on Tymlos as the best option. When I came home to Chicago my rheumatologist was in agreement and told me after 2 years of Tymlos back to Prolia. I finally have an endocrinologist appointment next month to determine if she will manage my op going forward and her drug choice after Tymlos

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3 replies
burrells5 | @burrells5 | Jan 17 7:18am
In reply to @ymv "I was on Prolia for 2 years. During that time I had a fractured femur, fractured..." + (show)
@ymv

I was on Prolia for 2 years. During that time I had a fractured femur, fractured tibia/mallelous and fractured patella. After the last 2 fractures in March 2023, I was referred to an op specialist in Phoenix. He started me on Tymlos as the best option. When I came home to Chicago my rheumatologist was in agreement and told me after 2 years of Tymlos back to Prolia. I finally have an endocrinologist appointment next month to determine if she will manage my op going forward and her drug choice after Tymlos

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Good to know. I'm still trying to get in with a specialist

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gravity3 | @gravity3 | Jan 19 7:01am

What reason did she give for taking you off of prolia

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1 reply
ymv | @ymv | Jan 20 6:42am
In reply to @gravity3 "What reason did she give for taking you off of prolia" + (show)
@gravity3

What reason did she give for taking you off of prolia

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He said that I had failed Prolia. Tymlos is a different class of drug. I’ve only seen a couple of references to using Tymlos and Prolia together

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1 reply
burrells5 | @burrells5 | Jan 20 6:51am
In reply to @ymv "I was on Prolia for 2 years. During that time I had a fractured femur, fractured..." + (show)
@ymv

I was on Prolia for 2 years. During that time I had a fractured femur, fractured tibia/mallelous and fractured patella. After the last 2 fractures in March 2023, I was referred to an op specialist in Phoenix. He started me on Tymlos as the best option. When I came home to Chicago my rheumatologist was in agreement and told me after 2 years of Tymlos back to Prolia. I finally have an endocrinologist appointment next month to determine if she will manage my op going forward and her drug choice after Tymlos

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Please keep me posted. I'm interested to see

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gravity3 | @gravity3 | Jan 20 7:23am
In reply to @ymv "He said that I had failed Prolia. Tymlos is a different class of drug. I’ve only..." + (show)
@ymv

He said that I had failed Prolia. Tymlos is a different class of drug. I’ve only seen a couple of references to using Tymlos and Prolia together

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Holy smokes! Failed prolia!?

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1 reply
ymv | @ymv | Jan 20 7:30am
In reply to @gravity3 "Holy smokes! Failed prolia!?" + (show)
@gravity3

Holy smokes! Failed prolia!?

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That’s what the doctor said because the 2 fractures in March were both spontaneous fractures!

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1 reply
gravity3 | @gravity3 | Jan 20 8:01am
In reply to @ymv "That’s what the doctor said because the 2 fractures in March were both spontaneous fractures!" + (show)
@ymv

That’s what the doctor said because the 2 fractures in March were both spontaneous fractures!

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So very sorry

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