Living with Atrial Fibrillation: What are Your Experiences?

Posted by yeb @yeb, Sep 1, 2024

I’m 74 and have just been diagnosed with chronic atrial fibrillation. My pulse rate usually stays between 75-100 and I’m taking 5mg of Eliquis twice daily. My cardiologist says there are no good meds for this type of Afib. I’m wondering if I should consider cardioversion, ablation, or just live with it and stay on the blood thinner? Anyone have experience living with AFib long term?? Thanks!

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This is for “yeb”
I’ve had AFib since 2016 and am now 79 - female. I had ongoing visits with my cardiologist with heart tests and was on a beta blocker Sotolol and blood thinner Xarelto.
I had extreme palpitations twice a month mainly due to stress. At one point I asked to be put on Sertraline to control the stress and it worked but over time the side effects were awful so I went off it. Finally after waiting two years due to our healthcare system I was booked in for a RF ablation March 4th as an outpatient. The surgeon is American and quite talented. He said at my age I have an 85% success rate. There’s a three month “blanking period” after surgery when the heart is healing and I did get some palpitations but nothing debilitating. One month after surgery I’m off the beta blocker but still on the blood thinner seeing how it goes and will get tested with a holter in a couple months. My cardiologist says I no longer have AFib. Keeping my fingers crossed! So bottom line is if you can get an ablation I would recommend it. Take care. xo

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This is a reply to jomack25 ... My Heart Goes Out To You ... (Think I've walked a mile or 2 in Your Moccasins.).
Mid-year 2021 I was 1st diagnosed with A-Fib ... the next 2-1/2 years All I saw was Physicians Assistants, I'd call to make an appt. & I'd tell the Appt. Person I want to see A Cardiologist, but when I'd get there I'd be seen by a P.A. instead. After this happened several times I'd change Clinics ... until I Finally Saw a Cardiologist. It took 2 years, all the while the P.A,.'s would prescribe the "usual Med.'s" for A-Fib., every prescription resulted in Severe Side Effects, 5-6-& sometimes 7 Severe Side Effects with every one! When I finally saw a Cardiologist, she looked at the list of Drugs & all the Side Effects & told me to Stop Taking Everything ... "Lets Let Your Body De-Tox." At the same time, she referred me to a Cardio-Surgeon in her Clinic. The Surgeon ordered a 3D-CTA later that week & said he recommended a Watchman implant. I told him I need some time to De-Tox before doing anything ... & He Asked Me What I Meant by "De-Tox"? I showed him the list of Drugs & All of the resulting Side Effects, he just 'rolled his eyes'! He was Emphatic I needed to have the 3D CTA Immediately, reluctantly I agreed, but after That we Needed to talk about an implant, then I wanted him to describe IN DETAIL thIS 3D CTA , he told me it was little more than an X-Ray, during the 'scan' the Tech would inject a little dye, but it'd flush out of my system in a matter of 8-12 Hours: "No Big Deal". WRONG! That Dye: Isovue370 landed me in bed for 5 Days... then +- every 6 weeks I'd have Other issues. I looked up Isovue370 those same reactions were experienced by Other Patients who'd had Isovue370 injections. With That I Had HAD It! Haven't been back to Cardiologists Since (that was 16 Months Ago.) The Next Cardiologist I plan to see will be at either Mayo or Cleveland Clinic, which will require traveling 400 or 500 Miles. My feelings ... Cardiologists in my Community: about on a level with "Snake Oil Flim-Flam'ers"! I Have to Wonder how many of Their Patients have ended up either going elsewhere or DEAD!

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@colleenyoung

Hi @ruthbruns, getting a new diagnosis of atrial fibrillation can be scary. To help you connect with other members who are living well with afib, I moved your question about treatments and alternatives to this existing discussion:
- Living with Atrial Fibrillation: What are Your Experiences https://connect.mayoclinic.org/discussion/can-you-live-with-atrial-fibrillation/

I did this so you can read previous posts and connect with members like @saganjames @kfox21 @yeb @lindy9 @jomack25 @gbear1953 @brian34 @predictable and many others who like you have afib and are living well.

The goals of atrial fibrillation treatment are to reset and control the heartbeat and prevent blood clots. Treatment will depend on several factors like how long you've had it, your particular symptoms and cause. Everyone is different.

I know it's scary and there's a lot to learn. Fellow patients are here to walk alongside of you.

Ruth, is this a recent diagnosis for you? What treatment or lifestyle approaches did you cardiologist discuss with you?

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Thank You Colleen for your answer (above) to ruthburns ... Your Statement "I know it's scary & there's a lot to learn" is So True. It was a Physicians Assistant whom I saw for a general check-up when I learned I had A-Fib ... during the appt. she sent me for a routine EKG as a part of the check-up, that's when A-Fib was detected. Something in her tone of voice, or what she said hit me like a FIRE ALARM! Then she said she didn't have time to explain What it Was, wrote a prescription for Warfarin-told me to pick it up on my way home & start taking it Immediately, also told me to come back in a couple of days & we'd discuss it, but DON'T GO to Dr. GOOGLE! ... a few days later She Left the Dr.'s Practice on a Medical Leave, & wasn't available for almost a Month! The next person in the Dr.'s office I talked to was equally alarming when explaining A-Fib. Both PA's cautioned me "Stay AWAY FROM Dr. GOOGLE!" Come To US to Talk about this!
Finally I had "Had-It-With them", went to my computer & then called a Cardiology Practice & booked an Appt. That's when I learned that 'A-Fib wasn't A Death Sentence' ... & began to lower my Stress Levels ... it all Began to make sense. The Cardiologist was CALM, KIND, Re-Assuring, & helped me with the Lifestyle changes that have improved my journey in living with A-Fib.

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@lindy9

Margaret - Your story and other similar ones are exactly why I do not run to the doctors for checkups or treatments for what I may or may not have. The only difference in my story is, after one bad experience, I did not continue, but read the handwriting on the wall and read, read, and read all the info I could find.

For me and irregular heartbeat, I quit coffee, colas, and anything containing caffeine. And increased my drinking of water. I rarely feel any irregularity and lasts maybe 5 seconds. I do not need to have a test to tell me I am okay. I do get a blood test about one time a year from a lab and examine it as you don't need to be Einstein to figure it out. To me, getting tests when I feel well at age 76, is like taking your car to a mechanic because it hiccups once in a while. They do their dance with a calculator and dollar signs in their eyeballs. My late husband who was an honest mechanic told me that people have their engines often replaced when the solution is to tighten a gas cap and clear the blinking warnings. Being dumb is not a virtue. One customer insisted that the air be removed from her tires and filled up with fresh air once a year because her late husband did it his whole life. Let that sink in.

Your story reminded me of a co-worker when I was in my 20's. I listened to her complain of UTI's and horrible treatments she had every 2 or 3 months. After a few years, I asked her if she ever ate any fruit. She said No. And never any veggies either. I had watched or heard what she ate at lunch every day and was just junk food.

One Friday, I went and bought her some time released Vitamin C and some fruit. On Monday morning she ran to my desk and told me that I had helped her in 3 days more than doctors had helped for years.

Take my stories to heart or leave them. Life is made up of choices. Unlike doctors and drug makers, I do not earn a dime for relating my experiences.

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Sincerest Thank You for your inspirational story. I guess in the past few years I've just put Too Much "faith" in MD's in my community... (I'm about a decade older than you)...when I was young Dr.'s took-to-heart "Do No Harm"! After 2-1/2 years of "Dancing to the Medical Communities' Fandango" I came to the conclusion "Times Have Changed!" Now we Patients Have to be Our Own Best Advocate. At times it's felt like "Snake-Oil Hustlers Are Back In Business!"

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My Afib has been 100% for eight months since open heart surgery. I take beta blockers and blood thinners and, other than fatigue and some breathlessness with activity, it's not too bad on medications. I couldn't take antiarhythmics and 4 cardioversions failed. I think I'd rather stick with the meds for myself. We are all different

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@aard

Some adolescent males were experiencing myocarditis, inflammation of the heart muscle after getting Covid-19. Myocarditis can be caused by viral infections, but occurred at higher rates in those who had Covid. Rate was higher for those under 16 and over 50, with higher occurrence in males than females.

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Thank you, aard. Yes, I seem to remember it that way. No relation to my query about the possibility of the vaccine causing heart issues. Sorry for misleading.

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@jackiet

I would be interested in hearing some more personal anecdotes that might tie into this theme. Seems to me I read somewhere about adolescent males having been documented with some kind of heart issues from the pandemic, though it could have been the COVID infection not the vaccine.

On February 13 of 2021 I got the first Pfizer COVID vaccine, followed on March 6 by the second. Then sometime early in August I had the first sign of bradycardia when I sedately fell over backwards onto my ottoman, was « out » for a few seconds, picked myself up and took off for my dentist appointment.

I’m not sure you need an M.D. or even a Ph.D to put together anecdotal evidence in the form of case studies. Not that it would prove anything.

But it could.

Jackie

P.S. I’m not an anti-vaxxer.

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Some adolescent males were experiencing myocarditis, inflammation of the heart muscle after getting Covid-19. Myocarditis can be caused by viral infections, but occurred at higher rates in those who had Covid. Rate was higher for those under 16 and over 50, with higher occurrence in males than females.

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@tommy901

I lived with AFib from 2005-2010. I started taking Magnesium Glycinate and a daily Aspirin in 2010. I very rarely have an episode of AFIb. Just an occasional "blip", as I would call it, maybe once a week.

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I do Magnesium and Aspirin too, never feel anything, can't see why I should mess with this at 84.

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61 yr old male and I was diagnosed with AFIB on Jan 15, 2025. I take Sotalol 80 mg & Eliquis 5mg twice a day and it keeps my heart in normal rhythm without issue. This is a newer safer anti arrhythmic specifically for AFIB patients.

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I should have mentioned that I didn’t get COVID until April of 2022 after having all four Pfizer shots and exactly one week after the fourth one.

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