Living with Atrial Fibrillation: What are Your Experiences?

Posted by yeb @yeb, Sep 1, 2024

I’m 74 and have just been diagnosed with chronic atrial fibrillation. My pulse rate usually stays between 75-100 and I’m taking 5mg of Eliquis twice daily. My cardiologist says there are no good meds for this type of Afib. I’m wondering if I should consider cardioversion, ablation, or just live with it and stay on the blood thinner? Anyone have experience living with AFib long term?? Thanks!

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@gloaming

The most recent categories for AF are:
Paroxysmal
Persistent
Long-term persistent
Permanent
https://www.healthline.com/health/atrial-fibrillation/types-of-atrial-fibrillation

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I'm aware of those categories, I just wondered about the use of the term "chronic" as applied to A-fib. I don't think it's an official category for duration of A-fib, though I noted back when my cardiologist and company first found my short runs of A-fib on my quarterly remote pacemaker reports, they referred to it as "chronic" A-fib a couple times. I see now they refer to it as paroxysmal A-fib, as it occurs whenever it feels like it, but it stops spontaneously generally within a few seconds to occasionally an hour or two. It's pretty well controlled with metoprolol, at least at this point, and often it's asymptomatic.

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@lindy9

I will summarize short and sweet my experience. I was able to stop 99% afib naturally by eliminating all caffeine from my diet and drinking more water as I was drinking very little. I had it severe when young. Now 76. No drugs or treatments for me. The Bible says that for every curse there is a cause. I believe in getting rid of the cause.

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Have heard now from a few about water intake - think I am low on that! Thanks

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@lindy9

Margaret - Your story and other similar ones are exactly why I do not run to the doctors for checkups or treatments for what I may or may not have. The only difference in my story is, after one bad experience, I did not continue, but read the handwriting on the wall and read, read, and read all the info I could find.

For me and irregular heartbeat, I quit coffee, colas, and anything containing caffeine. And increased my drinking of water. I rarely feel any irregularity and lasts maybe 5 seconds. I do not need to have a test to tell me I am okay. I do get a blood test about one time a year from a lab and examine it as you don't need to be Einstein to figure it out. To me, getting tests when I feel well at age 76, is like taking your car to a mechanic because it hiccups once in a while. They do their dance with a calculator and dollar signs in their eyeballs. My late husband who was an honest mechanic told me that people have their engines often replaced when the solution is to tighten a gas cap and clear the blinking warnings. Being dumb is not a virtue. One customer insisted that the air be removed from her tires and filled up with fresh air once a year because her late husband did it his whole life. Let that sink in.

Your story reminded me of a co-worker when I was in my 20's. I listened to her complain of UTI's and horrible treatments she had every 2 or 3 months. After a few years, I asked her if she ever ate any fruit. She said No. And never any veggies either. I had watched or heard what she ate at lunch every day and was just junk food.

One Friday, I went and bought her some time released Vitamin C and some fruit. On Monday morning she ran to my desk and told me that I had helped her in 3 days more than doctors had helped for years.

Take my stories to heart or leave them. Life is made up of choices. Unlike doctors and drug makers, I do not earn a dime for relating my experiences.

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Thanks so much, very helpful to me. I need lots of 'reality checks.'

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72M here. I had AFib for about six years. Last year it became too much with 59 episodes lasting 20+ hours each. In February, I finally had a PF ablation. Easiest procedure I've ever had done. Zero pain. Zero problems. An out-patient procedure. Now, almost two months later, I may be free from AFib. I'm getting back to pushing harder with exercise and lifting. I did have three episodes soon after the ablation (the first lasting 5 hours and then two episodes lasting 10 minutes) but they warned me I might still have some transient episodes for a few months. My advice is to go for ablation. Check with your doctor, but there are a lot of benefits to the new pulsed field ablation. Note, that you will likely have to stay on blood thinner. At my age and with high blood pressure, they say that, even if my AFib is gone, my score is still too high.

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@margaretfriel

4 years ago I went to my Internist for a 2-year check-up (82 yrs. old), a Physician Assistant saw me. At the end of the appt. she sent me to "imaging" for an EKG ... diagnosed - A-Fib. The P.A. immediately put me on Warfarin, & told me to come back in a couple of days to "talk-about A-Fib". The Practice kept calling-cancelling & re-scheduling the appts., ... finally I called a local Cardiologist for an appointment to learn more about A-Fib, & see if I could get Warfarin changed, by then I was having TERRIBLE Side Effects! 3+ months had passed since the initial diagnosis. The Cardiologist advised me she couldn't change a prescription another Dr. (Phys. Asst.) ordered! I called the Dr. of Internal Medicine & told them I NEEDED an appt. A.S.A.P., they asked "Why", then said 'No appt.s available for 3 months, go to an ER"... So I got in my car, went into their office & asked for my files. I told them I would find a New Dr. if they wouldn't see me about a prescription one of their P.A.'s had ordered.
When I saw the Cardiologist I asked her to refer me to a New Internist, & we got that Prescript. changed.
Over the next 2-1/2 YEARS I was referred to 5 more Dr.'s or Phys. Asst.'s, each would change what a previous Health Professional had prescribed ... all together 7 Dr.'s or P.A.'s, 7 Diagnosis', & 7 different Prescript.'s - ALL of the Med.'s resulted in Severe Side Effects: 4 blood thinners, 2 Prescript.'s for high blood pressure & a Very Bad reaction to Iosvue 370 Dye injected for a 3-D CTA. At that point I HAD HAD ENOUGH!
Not only did I stop taking Prescripts., I've stopped going to Doctors! It Frustrates me that when I was diagnosed 4 years ago I had NO awareness (NO symptoms) of A-Fib ... 3 years of being referred by one Medical Professional to another, 2-1/2 years of dealing with TERRIBLE Side Effects to Every Medication prescribed, I'm Very Much Aware I Have A-Fib, but I Feel The Medical Profession has "bounced me around like a Tennis Ball", put me thru A Lot of Pain, Confusion, & Misery with all the TOXIC Med.'s ... My Body & I NEED to De-Tox. (find a "New Normal"?) & start all over.
When I feel I Need Help, I'm Leaving Town & going to a Major City Heart Clinic such as Rochester - MAYO CLINIC, ST. LUKES in St. Louis, or CLEVELAND CLINIC.

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Margaret - Your story and other similar ones are exactly why I do not run to the doctors for checkups or treatments for what I may or may not have. The only difference in my story is, after one bad experience, I did not continue, but read the handwriting on the wall and read, read, and read all the info I could find.

For me and irregular heartbeat, I quit coffee, colas, and anything containing caffeine. And increased my drinking of water. I rarely feel any irregularity and lasts maybe 5 seconds. I do not need to have a test to tell me I am okay. I do get a blood test about one time a year from a lab and examine it as you don't need to be Einstein to figure it out. To me, getting tests when I feel well at age 76, is like taking your car to a mechanic because it hiccups once in a while. They do their dance with a calculator and dollar signs in their eyeballs. My late husband who was an honest mechanic told me that people have their engines often replaced when the solution is to tighten a gas cap and clear the blinking warnings. Being dumb is not a virtue. One customer insisted that the air be removed from her tires and filled up with fresh air once a year because her late husband did it his whole life. Let that sink in.

Your story reminded me of a co-worker when I was in my 20's. I listened to her complain of UTI's and horrible treatments she had every 2 or 3 months. After a few years, I asked her if she ever ate any fruit. She said No. And never any veggies either. I had watched or heard what she ate at lunch every day and was just junk food.

One Friday, I went and bought her some time released Vitamin C and some fruit. On Monday morning she ran to my desk and told me that I had helped her in 3 days more than doctors had helped for years.

Take my stories to heart or leave them. Life is made up of choices. Unlike doctors and drug makers, I do not earn a dime for relating my experiences.

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I am 70 and recently diagnosed with A fib. My mother had it in her early 60s and lived till 82. It was not the cause of her passing.
So Im learning more myself!

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@marybird

I guess I am late to this party, but what is the difference between "chronic" A-fib and "persistent" A-fib. I have seen the term "persistent" used to describe A-fib which is occurring all the time in a patient.

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The most recent categories for AF are:
Paroxysmal
Persistent
Long-term persistent
Permanent
https://www.healthline.com/health/atrial-fibrillation/types-of-atrial-fibrillation

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I guess I am late to this party, but what is the difference between "chronic" A-fib and "persistent" A-fib. I have seen the term "persistent" used to describe A-fib which is occurring all the time in a patient.

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My story: I am 78 and, after having 2 ablations in 3 years, took my cardiologist's advice and had a pacemaker put in. It has changed my life for the better in innumerable ways. The trepidation of never knowing when an afib episode would occur is gone so my daily activities can proceed without unexpected interruption is perhaps the biggest relief. I feel "normal" again. I wish you much luck with whatever you decide to do.

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Thank you for reaching out! I have had Afib for some 10 years and have managed, to my mind, quite well. I use homeopathic remedies that keep me in a place where I have no symptoms that I experience it is only when I go to the cardiologist and he listens to my heart and does a ekg that it shows up. I have over the years had all the stress tests and do fine. There is the scare of a stroke, I have had one (completely unrelated to the Afib) but this all puts me at a higher risk. My homeopathic physician is thinking the blood thinner is the best choice as I am not keen on having the implant. I actually am fine with leaving all as it is, I am almost 85, feel fine but a stroke would be a life changing event that I of course do not want. I do exercise, walk and am raising a child, now a teen. So I am active. Thanks again for reaching out. Warmly Ruth Bruns

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