Acute myeloid leukemia (AML): What can I expect?

I will be praying for you for rest. Peace and hope. With God all things are possible. Just trust him.

Thank you

Oh gosh, I wish I could reach through the computer this morning and give you a gentle hug. You surely didn’t need to have back issues tossed in on top of the AML treatments! I’m so sorry you’re having to deal with all of this at one time…it’s no wonder you’re feeling overwhelmed.

In the darkest moments, I found the strength within me to keep fighting. You can do this too! I know it’s the last thing you feel like doing, but if you can find even small moments during each day that bring you joy, a sense of peace or calmness, it can help to recharge your soul. Watch and listen to birds from your window. Take a little walk if you’re able. Watch a funny tv show, talk with a friend, admire the beauty of frost on the window… You are strong, resilient and will get through this rough stretch of road. And when you do, you’ll reflect back on the amazing inner strength you found to get you through each day.
Sending my annoyingly perky vibes of strength and healing for you! ☺️ Will you let me know how you’re feeling after treatment on Monday? (But you don’t have to wait until then…I’m here for you any time!)

I had to have aback procedure and did not start oral meds. Had one round and to start again next Monday. Do not like any of this.
Hope my back clears up ..almost too much to deal with I pray everyday..just down and out now

That’s excellent news! There have been so many positive changes in the advancement for treating MDS and AML over the past years. I had AML 6 years ago but was fortunately able to have a bone marrow transplant at 65. That’s not always available as we age. So having these newer meds that are better tolerated has really given a rare gift of time when otherwise no treatment options were available!
So glad you found the sweet spot of Vidaza and here to offer encouragement to so many others going through AML/MDS!

Thought it was time to check in with you to see how treatment is going for the AML. Are you coming up on your next round soon?

Yes. Vidaza of 100 MG x 3 days + 7 days ventecolax every 28 days. Full strength vidaza over 5 days was burning me up....so we looked for a sweet spot. Soooo grateful for my team and God. He has other plans for me.

Love this story, @dancouclanel4! You’re having amazing success with your treatment for AML. Going from 26% blasts to 0% and holding is miraculous! A little joke one of my doctors and I shared was, “Life is a blast until you find them in your blood.” Only a handful of us understand the nuances of that little anecdote.
Are you on cycles of Vidaza (azacitidine) and Venetoclax?

I have had MDS/AML IN December 2023 with 26% blasts, admitted to hospital for month leaving with astounding results. AML is no game. OS was less than a year. I'm now on my 15th cycle with AML in remission as of September 2024. MDS persists. My oncologist and care team at OCSRI Tulsa OK are top of the line. Blood #s are up and exceeding parameters which is another story.....but NO BLASTS!! I'm 80 years old and love a good fight. 👍

Justin, my reason for being on the discussion page my husband has MF, so one page leads to another. My husband has dear first cousins that are hemophiliacs. You probably all ready know this, hemophilia is passed thru females to their male children. It doesn’t mean every male child will have it or every female will pass it on. His cousins were tested to find which girls carry and boys would have it. He had a dear cousin that lived a sheltered life his family always afraid he would get hurt somehow, after he grew up he decided he would live his life to the fullest. Which he did, he died at the age of 75 for something else.