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Can anyone tell me how they cope with EPI
I have recently been diagnosed with EPI and are taking Creon but the doctor hasn’t told me what I can and cannot eat I am researching that on my own. I still have diarrhea and would like to know what is considered a snack.
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Sorry for the diagnosis, i do think that if you dig around this site a bit you shall find it can be an excellent resource. Individuals willingness to discuss their issues can helpful i have discovered.
Find strings with EPI in their title, and also read the ones with SIBO since those with EPI seem prone to it.
@dt61 … it is a fact that most Drs prescribe NOT enough creon to start with! My previous Dr prescribed me a child’s amount. I have severe EPI which is usually the case with diarrhea. EX: a 180lb person should be taking 5 x creon 36,000 per meal. This Ex is from the Creon site this is the max. dose which is usually needed for severe. Severe is elestase below 100. Do you know what your elastase test number is? Be aware your prescription could reflect your “ideal” weight. Also you do not need to take creon when eating fresh fruit, apples , bananas , etc or fruit juices. There are a few sites that can give you some basics. My previous Dr office only did one good thing, the creon dose instruction…
“take at beginning of a meal take one mouthful of food then take your creon”. This works best to allow the creon to function. This way the creon will not get flushed out of your stomach. Creon is a delayed release med which starts to work as the food exits the stomach. To simulate what your body would naturally do.
Its a trial and i myself simply laugh at it all (that i have)these days. I literally can only digest scrambled eggs, nothing else (period) without paying an extremely bad digestive experience. I am beyond max dose on creon. Weight? once upon a time 2-3 years ago 160-170 for years, sometimes more.
Now 114-116lbs , 5'11".