C6 nerve compression and double vision

Posted by traceycat @traceycat, Jan 28 1:24am

Hi everyone
I’ve been really struggling with double vision, waking up every day with a headache on one side of my head, I feel dizzy a lot of the time and had a couple of really bad vertigo episodes. Also feeling nauseous and unwell with pain in my left arm and leg. I literally can’t get comfortable in any position and I sleep really badly. I get really weird facial twitches and have developed tinnitus
Honestly I can’t tell you how much my life has been affected, it’s getting to the point where I can’t do any of the things I love because I feel so unwell.
I’ve been bounced between audiologists, endocrinologists, neurologists, physiotherapists and no on could tell me what’s causing my issues. Brain scan normal, all other tests normal, and I was starting to feel after years and years of going to my gp and specialists that I’m going crazy and imagining my symptoms.
Long story short, most recent brain and neck scan showed normal brain function but ‘narrowing’ at c6. On looking this up myself, I found this can cause double vision and many of the other things I’ve been experiencing.
Can anyone tell me if they have had a similar thing and if it can be fixed? I would be so grateful for any advice.
Sorry if I sound like a misery, just had years of this and I’m so down about it.
I’m in the uk by the way, but thought this forum looked really useful. And if I’m honest, the nhs here is very overstretched so getting any help is difficult
Thanks for reading
Tracey

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@jm1

Typo correction Its a publication at NIH. Neurologist is best bet. Wasted too much time with 5 Ents and a few GP'S. No more coffee or chocolate or wine or other foods that aggravate allergies. No gardening or pollen/mold exposure. Neck brace when needed. Lomit computer and texts. Special book holder. Ice packs when inflammed. Along with meds. Afrin and omnaris sometimes help with dizziness too.

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Appreciate the tips. I’m willing to try anything that might help!

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@traceycat

Appreciate the tips. I’m willing to try anything that might help!

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If you haven't tried it already, I recommend looking into an upper cervical care modality like NUCCA. I believe atlas subluxation is vastly underdiagnosed because most practitioners don't know what to look for, let alone how to treat it.

Don't underestimate the range and severity of effects that can be induced by atlas subluxation. Everything is fair game. I've been undergoing NUCCA care for two years, and while it can be a roller coaster, at least it's a roller coaster in the positive direction rather than the other way around, which it was for so many years. If you have any questions about what it's like or how it works, just ask.

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@cosmicram

If you haven't tried it already, I recommend looking into an upper cervical care modality like NUCCA. I believe atlas subluxation is vastly underdiagnosed because most practitioners don't know what to look for, let alone how to treat it.

Don't underestimate the range and severity of effects that can be induced by atlas subluxation. Everything is fair game. I've been undergoing NUCCA care for two years, and while it can be a roller coaster, at least it's a roller coaster in the positive direction rather than the other way around, which it was for so many years. If you have any questions about what it's like or how it works, just ask.

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Hi
Thanks for your reply. I’m not really sure what NUCCA care is, so if you could explain further that would be great. What you said resonates, I have such a wide range of very odd symptoms that it seems almost unbelievable that there’s a connection.
Sounds like you are getting some help though, so that’s really positive
Tracey

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@traceycat

Hi
Thanks for your reply. I’m not really sure what NUCCA care is, so if you could explain further that would be great. What you said resonates, I have such a wide range of very odd symptoms that it seems almost unbelievable that there’s a connection.
Sounds like you are getting some help though, so that’s really positive
Tracey

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NUCCA is a style of upper cervical care. It is designed to assess and treat misalignment of the C1 (atlas) vertebra. Due to its proximity to the skull and the embedded vestibular apparatus, a misalignment of C1 tilts the skull relative to the rest of the body and distorts the body's relationship with gravity. This leads to aberrant patterns of muscular tonus throughout the body in an attempt to compensate for the tilted head, eventually resulting in scoliosis and nerve compression, among other things. Symptoms will correlate with whatever pattern of nerve compression is induced by one's specific misalignment at C1. This is why any and all organ systems can potentially benefit from atlas care.

If X-rays are indicative of C1 misalignment, the treatment is very gentle and noninvasive--so much so that the average person is likely to doubt whether it could possibly have any effect. You basically lay on your side for 5-10 minutes while the chiro provides strategically targeted little shoves to the transverse process of C1. It's a quick, painless procedure. In my experience, some effects can be felt immediately, before even getting up off the table, while others take days, weeks, or months to manifest. Everyone's experience is unique because their misalignment is unique.

The longer one's atlas has been out of alignment, the longer it takes to reverse the damage, and the less likely it is to achieve full resolution. This is why atlas care is much more efficient with young people or if administered soon after the trauma that caused the misalignment. By trauma, I mean anything from whiplash to bumping your head. An adjustment should, at the very least, put a pause on further degeneration until the body reorganizes itself. Individual results will vary based on the competency of the practitioner as well, so I'd recommend using the Find a Doctor on the NUCCA.org website.

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@cosmicram

NUCCA is a style of upper cervical care. It is designed to assess and treat misalignment of the C1 (atlas) vertebra. Due to its proximity to the skull and the embedded vestibular apparatus, a misalignment of C1 tilts the skull relative to the rest of the body and distorts the body's relationship with gravity. This leads to aberrant patterns of muscular tonus throughout the body in an attempt to compensate for the tilted head, eventually resulting in scoliosis and nerve compression, among other things. Symptoms will correlate with whatever pattern of nerve compression is induced by one's specific misalignment at C1. This is why any and all organ systems can potentially benefit from atlas care.

If X-rays are indicative of C1 misalignment, the treatment is very gentle and noninvasive--so much so that the average person is likely to doubt whether it could possibly have any effect. You basically lay on your side for 5-10 minutes while the chiro provides strategically targeted little shoves to the transverse process of C1. It's a quick, painless procedure. In my experience, some effects can be felt immediately, before even getting up off the table, while others take days, weeks, or months to manifest. Everyone's experience is unique because their misalignment is unique.

The longer one's atlas has been out of alignment, the longer it takes to reverse the damage, and the less likely it is to achieve full resolution. This is why atlas care is much more efficient with young people or if administered soon after the trauma that caused the misalignment. By trauma, I mean anything from whiplash to bumping your head. An adjustment should, at the very least, put a pause on further degeneration until the body reorganizes itself. Individual results will vary based on the competency of the practitioner as well, so I'd recommend using the Find a Doctor on the NUCCA.org website.

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Thank you cosmic ram, that’s really helpful, I will have a look
Tracey

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@cudabinacontenda

Sorry to hear about the tough time you’re having, Tracey. A few months back I was diagnosed with stenosis, including a bulging disk and osteocytes that are touching (but not compressing) my cord at C5-6. I have other lesser problems at C6-7. My primary symptoms are feelings of numbness and weakness in my lower arms and legs, although physical tests show no definable strength loss. Both my spine doc and PT say my MRI doesn’t explain the lower leg problems. I went to a neurologist who said the same. I also get periodic bouts of nausea and light-headedness when I look down too much, especially in physical activity when, say, cleaning or cooking. Likewise, I feel that I have slight gait disturbances after the same activities. None of the docs (my PT is also a doc) can explain these ancillary and only periodic symptoms, but I’m convinced they’re all related. No vision or hearing problems related to the stenosis, although I have a prior ear injury that causes me separate issues with hyperacusis and minor hearing loss.

I’ve been lucky that PT has definitely helped lessen my symptoms. In fact, some days I’m in no discomfort at all. But I have to avoid many things I like to do and have made adjustments on other activities, like getting book and laptop stands that bring everything to eye level so that I don’t have to drop or tilt my head to read or type. I’ve also been sitting in a straight-back chair to watch TV and generally keeping good posture which requires constant attention. Life-changing to say the least, but I’m doing ok, again thanks to PT

I hope you get to the bottom of your complications and find relief with appropriate intervention.

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@cudabinacontenda Your imaging does explain your lower body symptoms and gait disturbances. I ran into this problem myself and saw 5 spine surgeons who were confused by this. It is called "funicular pain" where contact with the cervical spinal cord causes pain to be referred to the lower body and limbs.

My very first symptom was a pain in my ankle, and it's common for surgeons to think this should be caused by lumbar spine pathology. This was my big discovery when I found this which was my accurate diagnosis in medical literature. I only had a ruptured cervical disc and none in lumbar that were causing issues.

I found the study by searching for the term "funicular pain" because I found that in a paper co-authored by a Mayo surgeon. I hired him because I knew I had found someone who wouldn't question the validity of my symptoms. I wish I could enlighten spine surgeons everywhere to this condition because it is real and exists.

Here is the medical literature that changed my course of treatment. The problem is there is no diagnostic test for this, and the only confirmation is that decompression surgery fixes this pain. A clue that you may have it, is that an epidural spine injection takes away your pain temporarily. I had that experience too and the injection took away all my pain everywhere, but the surgeon didn't understand the results and ignored it. I found myself in the position of being dismissed by a high level surgeon, then finding his mistake, and no one would help me address it with him, so I needed to look elsewhere.

When I came to Mayo, I sent this literature with my imaging and asked the question, is my case like this? and I asked a guy who knew about funicular pain. That way, you put the ball in their court before any conclusions are made, and you are asking for their advice instead of telling them how to do their job.

Cervical cord compression presenting with sciatica-like leg pain
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3111492/

Do you think your doctors will be receptive to reading this literature?

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Jennifer, thank you so much for this! I am going to bring it to all of my follow-up appointments with spine surgeon, neurologist and DPT! I’m pretty confident that they will all read and consider it.

I’ll let you know what happens and fill you in on my progress. You are enormously helpful! Thanks again!

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