C Diff issues after completing antibioitcs

Posted by vdyjor @vdyjor, Sep 1 11:12am

I was diagnosed with c diff 9 weeks ago. I went through 2 different antibioitics. It seemed better but now almost 4 weeks later I am still having bowel movements 8 t0 15 times a day. Nothing seems to help slow or stop it. The only time I get a break is when I go to bed at night. I may get up once all night but then it starts up as soon as I get up in the morning. Does anyone have any ideas or suggestions as to what this maybe causing this? The infectious disease doctor gave me Cholestyramine to take once a day but it has not helped.

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I would ask to be tested again to make sure the C. Diff is no longer an issue. (I also experienced the phenomena of frequent bathroom visits during the day, but a blessed reprieve at night while I slept. )Between the antibiotics and c diff toxins, my microbiome and gut lining was shot. I continued to have diarrhea, couldn’t eat and was dropping weight until a doctor told me to take a specific probiotic called ProBioMed 250 by Designs for Health (designsforhealth.com). It’s pricey, but worth it - within a couple days I noticed a remarkable difference. I was told to take it for 4-6 weeks and to stop if I got constipated. Within a month I saw a gastro doc who specializes in C Diff who said the ProBioMed was good, but wanted me to replace with Visbiome 112.5 and Florastor. He said I would be much improved within a couple weeks. He was correct. Another great improvement. However…the damage to the lining of my gut resulted in post-infectious IBS. Eating food on the FODMAP diet allowed me to eat safe foods and allowed my gut lining to start to heal. After a couple of months I was able to slowly re-introduce non-FODMAP foods. After a while I consulted with the C Diff Queen, gastro doc Dr. Sabine Hazan - progenaBiome.com - (read her book “Let’s Talk Sh!t”) and have been on her protocol for a few months. The infection and antibiotics destroyed my microbiome which resulted in terrible dysbiosis (sp?) which we are working on to correct. When you are able, food you need to include are yogurts, sauerkraut (refrigerated, not heated organic raw fermented), all the fermented foods.

All the best, please let us know how you are doing.

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Years ago, I got C Diff after completing an intense course of antibiotics for food poisoning. The only antibiotic that worked for me was Vancomycin but it's a tightly controlled antibiotic since, at the time, it was considered the "antibiotic of last resort"

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Profile picture for scottbeammeup @scottbeammeup

Years ago, I got C Diff after completing an intense course of antibiotics for food poisoning. The only antibiotic that worked for me was Vancomycin but it's a tightly controlled antibiotic since, at the time, it was considered the "antibiotic of last resort"

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Thank you for your help! I will check with my Dr.

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Profile picture for cas924 @cas924

I would ask to be tested again to make sure the C. Diff is no longer an issue. (I also experienced the phenomena of frequent bathroom visits during the day, but a blessed reprieve at night while I slept. )Between the antibiotics and c diff toxins, my microbiome and gut lining was shot. I continued to have diarrhea, couldn’t eat and was dropping weight until a doctor told me to take a specific probiotic called ProBioMed 250 by Designs for Health (designsforhealth.com). It’s pricey, but worth it - within a couple days I noticed a remarkable difference. I was told to take it for 4-6 weeks and to stop if I got constipated. Within a month I saw a gastro doc who specializes in C Diff who said the ProBioMed was good, but wanted me to replace with Visbiome 112.5 and Florastor. He said I would be much improved within a couple weeks. He was correct. Another great improvement. However…the damage to the lining of my gut resulted in post-infectious IBS. Eating food on the FODMAP diet allowed me to eat safe foods and allowed my gut lining to start to heal. After a couple of months I was able to slowly re-introduce non-FODMAP foods. After a while I consulted with the C Diff Queen, gastro doc Dr. Sabine Hazan - progenaBiome.com - (read her book “Let’s Talk Sh!t”) and have been on her protocol for a few months. The infection and antibiotics destroyed my microbiome which resulted in terrible dysbiosis (sp?) which we are working on to correct. When you are able, food you need to include are yogurts, sauerkraut (refrigerated, not heated organic raw fermented), all the fermented foods.

All the best, please let us know how you are doing.

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Wow! Thank you so much. I like you only get a reprieve while sleeping. I will try the probiotic you suggested ans see if there is an improvement and I will talk to my doctor about a retest for c diff.
Thank you for all the good information and I will check out the Let's talk Sh!t book.

I will keep in touch.

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Profile picture for vdyjor @vdyjor

Wow! Thank you so much. I like you only get a reprieve while sleeping. I will try the probiotic you suggested ans see if there is an improvement and I will talk to my doctor about a retest for c diff.
Thank you for all the good information and I will check out the Let's talk Sh!t book.

I will keep in touch.

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Also, for more C Diff information, check out the Peggy Lillis Foundation at cdiff.org. You will find a lot of very helpful information there.

One more thing I wanted to mention. It has been 14 months since my c diff diagnosis. Doctors kept telling me “it will take some time” to get better. I had no idea what that meant, and kept getting frustrated when I wasn’t better in a few days or weeks. Turns out, in my case, “some time” meant MONTHS before I felt like myself again. So be patient with yourself. You’re going to have to rebuild your microbiome back up.

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Profile picture for cas924 @cas924

Also, for more C Diff information, check out the Peggy Lillis Foundation at cdiff.org. You will find a lot of very helpful information there.

One more thing I wanted to mention. It has been 14 months since my c diff diagnosis. Doctors kept telling me “it will take some time” to get better. I had no idea what that meant, and kept getting frustrated when I wasn’t better in a few days or weeks. Turns out, in my case, “some time” meant MONTHS before I felt like myself again. So be patient with yourself. You’re going to have to rebuild your microbiome back up.

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I will check out the information on C diff website. I have been so depressed and everything felt hopeless. Thank you again so much for the information and encouraging words. I do not feel so alone. Any insight is encouraging. Thank you!

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You are definitely not alone. I think you will find helpful info at Peggy Lillis Foundation. They have people who you can talk to…

Hugs…

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Hi, I feel your anxiety and pain regarding this horrible problem. I have commented on another site about C Diff and the problems I have had since I picked it up after a colonoscopy in 2015. Off and on until a fecal transplant in 2019. I was free of the issue until 2024 when it raised its ugly head again for some unknown reason. After testing and another colonoscopy to rule out other issues, I decided to go the Vowst route instead of the colonoscopy fecal transplant. So far so good. I took the Vowst in March and so far have been C Diff free.
I had been on Vancomycin almost constantly during that time. Not all probiotics work. I have tried them all. Sometime they do more harm than good. I was taking Florastor for years. I believe it did help for awhile. Each persons gut microbes are different, that's why trying to find probiotics that fit with your gut microbes is difficult and expensive. Most don't make it out of the stomach acids. Florastor is one that does.
If your C Diff becomes more than you can deal with and keeps coming back, look into the Vowst. It's expensive but it can be a life saver. Good luck 🙂

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Profile picture for darlenem2 @darlenem2

Hi, I feel your anxiety and pain regarding this horrible problem. I have commented on another site about C Diff and the problems I have had since I picked it up after a colonoscopy in 2015. Off and on until a fecal transplant in 2019. I was free of the issue until 2024 when it raised its ugly head again for some unknown reason. After testing and another colonoscopy to rule out other issues, I decided to go the Vowst route instead of the colonoscopy fecal transplant. So far so good. I took the Vowst in March and so far have been C Diff free.
I had been on Vancomycin almost constantly during that time. Not all probiotics work. I have tried them all. Sometime they do more harm than good. I was taking Florastor for years. I believe it did help for awhile. Each persons gut microbes are different, that's why trying to find probiotics that fit with your gut microbes is difficult and expensive. Most don't make it out of the stomach acids. Florastor is one that does.
If your C Diff becomes more than you can deal with and keeps coming back, look into the Vowst. It's expensive but it can be a life saver. Good luck 🙂

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Thank you very much for your insight with this problem. I have been miserable for many months. I will ask my dr about the fecal transplant. I have tried many probiotics but they all seem to make my problem worse. I have tried 3 different types and my gut just not like them. I have been eating yogurt to put some good bacteria back in.
Thank you again for the information. I really appreciate it.

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I hope you get some relief soon. I know it is a tough road to walk. I have read so many articles and watched many panel discussions about C Diff, it is different for everyone that's what makes it so difficult to control and to find something that works. That's why I stopped taking probiotics some can make it worse. Florastor is one of the good probiotics for C Diff. I have spent so much money on different ones that really don't do anything. Yogurt can help in some instances but it needs to make it into the GI tract. Most don't, that's another misconception.
Ask your doc about the fecal transplant. It is the only thing that did work for me. That's not to say, it can raise its ugly head at anytime. In fact, we were taking our grandchildren away for a week and my doc did give me a 10 day supply of Vanco, just in case. Prayers for you. 🙂

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