BVD and daily headache
I have binocular vision disorder which worsened again after a month long bout with severe migraine with aura. During that time I was severely photosensitive and also nearly blind from the auras that included genera blurriness, flashes, bright central light, and spots that persisted with eyes closed. The smallest light would trigger a level 10 headache 3x a day. It finally resolved but I still get daily afternoon headaches and dizziness despite wearing prism glasses for exophoria and convergence insufficiency. I see a neuro-optometrist. She feels limited in how to help. My headache specialist doesn’t want to talk about any connected systems not about headache types or causes. My naturopath and PT Ame’s physiatrist have helped with cervicogemic issues and my dentist with jaw tightness. Botox and AJOVY also seem to help but that’s limited. I feel like I’m missing a diagnosis and am terrified of having another month long bout. Frankly I fear stroke and permanent vision loss. Also the pain of course. Does anyone out there recognize similar symptoms and what was the diagnosis?
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