Burning tingling sensation all over face

Posted by mattey741 @mattey741, Oct 29, 2024

Not sure if this is the proper place for this. I suffer from a burning tingling face yet my face if anything feels cold to touch. My legs feel damp under my trousers. None of this is life threatening I'm sure but so difficult to deal with. Would love to hear from anyone with similar symptoms or answers. Thank you.

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I too have been experiencing constant pulling/tightness that began in my face last January and has progressed to burning sensations throughout my entire body. I spent 2 weeks at Mayo ruling out all kinds of diseases and sadly the conclusion is idiopathic neuropathy that has caused centralized sensitization - meaning that my cns has rewired itself and my nerves are misfiring pain signals..
Gabapentin doesn't work for me and I've been taking pregabalin, however it isn't working anymore. Just to sleep I am taking lunesta, Ativan. & Melatonin. But I wake up at several times in excruciating pain.
The pain therapist say in need to let go of the fear that is causing the stress that makes it worse. Sort of impossible to to when your body is on fire.

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Profile picture for canjpt @canjpt

I too have been experiencing constant pulling/tightness that began in my face last January and has progressed to burning sensations throughout my entire body. I spent 2 weeks at Mayo ruling out all kinds of diseases and sadly the conclusion is idiopathic neuropathy that has caused centralized sensitization - meaning that my cns has rewired itself and my nerves are misfiring pain signals..
Gabapentin doesn't work for me and I've been taking pregabalin, however it isn't working anymore. Just to sleep I am taking lunesta, Ativan. & Melatonin. But I wake up at several times in excruciating pain.
The pain therapist say in need to let go of the fear that is causing the stress that makes it worse. Sort of impossible to to when your body is on fire.

.

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@canjpt Hello there,
Do you have burning inside your head and mouth?
I’ve been diagnosed with Small Fiber Neuropathy but have not found any relief for the neuropathy throughout my body!
I’m so sorry you’re going through this as well!!🙏🏼🙏🏼

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Profile picture for jandy88us @jandy88us

@canjpt Hello there,
Do you have burning inside your head and mouth?
I’ve been diagnosed with Small Fiber Neuropathy but have not found any relief for the neuropathy throughout my body!
I’m so sorry you’re going through this as well!!🙏🏼🙏🏼

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@jandy88us yes my mouth as well. PET/CT scan didn't show anything neither did blood tests. I left mayo without a diagnosis...though in still waiting on results of a skin biopsy that was taken there almost 2 weeks ago.
I have been told basically to work on not thinking about it and trying relaxation techniques which is very pretty much impossible when living in constant pain that keep getting worse. I am so depressed and depleted I just don't know what to do. The pain meds only make my feel out of it and more wobbly but I'm in so much pain and .not getting any period of relief beyond the mild relief that standing in a shower can sometimes bring. I just don't know how to continue.

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Profile picture for canjpt @canjpt

@jandy88us yes my mouth as well. PET/CT scan didn't show anything neither did blood tests. I left mayo without a diagnosis...though in still waiting on results of a skin biopsy that was taken there almost 2 weeks ago.
I have been told basically to work on not thinking about it and trying relaxation techniques which is very pretty much impossible when living in constant pain that keep getting worse. I am so depressed and depleted I just don't know what to do. The pain meds only make my feel out of it and more wobbly but I'm in so much pain and .not getting any period of relief beyond the mild relief that standing in a shower can sometimes bring. I just don't know how to continue.

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I am so sorry!!!You’re not alone that’s for sure! I’ve been told the same thing! I have found that chewing gum helps take the edge off the burning pain in my head and my mouth!My doctor put me on Ambien so I can atleast sleep through the night.My pain progresses as the day goes by so bedtime was absolutely horrible when I couldn’t sleep!I pray you get some relief soon!! Please stay in touch!

Sent from Yahoo Mail for iPhone

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