Burning tingling sensation all over face

I too have been experiencing constant pulling/tightness that began in my face last January and has progressed to burning sensations throughout my entire body. I spent 2 weeks at Mayo ruling out all kinds of diseases and sadly the conclusion is idiopathic neuropathy that has caused centralized sensitization - meaning that my cns has rewired itself and my nerves are misfiring pain signals..
Gabapentin doesn't work for me and I've been taking pregabalin, however it isn't working anymore. Just to sleep I am taking lunesta, Ativan. & Melatonin. But I wake up at several times in excruciating pain.
The pain therapist say in need to let go of the fear that is causing the stress that makes it worse. Sort of impossible to to when your body is on fire.

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@canjpt Hello there,
Do you have burning inside your head and mouth?
I’ve been diagnosed with Small Fiber Neuropathy but have not found any relief for the neuropathy throughout my body!
I’m so sorry you’re going through this as well!!🙏🏼🙏🏼

@jandy88us yes my mouth as well. PET/CT scan didn't show anything neither did blood tests. I left mayo without a diagnosis...though in still waiting on results of a skin biopsy that was taken there almost 2 weeks ago.
I have been told basically to work on not thinking about it and trying relaxation techniques which is very pretty much impossible when living in constant pain that keep getting worse. I am so depressed and depleted I just don't know what to do. The pain meds only make my feel out of it and more wobbly but I'm in so much pain and .not getting any period of relief beyond the mild relief that standing in a shower can sometimes bring. I just don't know how to continue.

@mattey741 is it on one side? I have this on my left side only. I am told it could be from my neck, or from my brain (facial nerve). Trigeminal neuralgia is usually one sided I believe but not sure. So sorry you are suffering.

I have all kinds of sensations all over at different times. "Paresthesias" in arms at times, chills even in a hot shower etc. I am used to them at this point but the facial numbnesss and pain lately has led me to a doctor and some testing for an acoustic neuroma, a benign tumor. Just to be sure. Again, that tends to be one-sided.

Do you have any food sensitivities? My arm sensations got a lot better when I gave up dairy and wheat. I was surprised. I had autoimmune testing which was positive for lupus and scleroderma but so far not damaging. You might want some blood tests and imaging- at least that is what I end up with.

Massage and cranial sacral work can help. I see a neuro and an integrative medicine doctor and the latter suggests supplements to deal with inflammation of nerves. Hope you get some relief!

@windyshores my sister is also facing similar issues but has started recently. She has burning sensation on the left side of her face.
She has done the MRI PET scan which shows a patch on the left side. Can you share if possible what is your experience. What is the cause of this? Hope you are feeling better now

@windyshores my sister is also facing similar issues but has started recently. She has burning sensation on the left side of her face.
She has done the MRI PET scan which shows a patch on the left side. Can you share if possible what is your experience. What is the cause of this? Hope you are feeling better now

@meenakshic26
Hi, I am sorry but I really have nothing to help you with. In December 23 I had a pituitary tumor removed. For many years before this I was suffering from this burning sensation, tingling all over my face. It was thought that the tumor could have been causing this. The removal of the tumor did not cure the problem. I still have the same problem today. I have had all sorts of scans and all sorts of nerve medicine but no cure. I am sorry that this is all negative but it is my experience. Please let me know if you come up with answers and god bless you. Matt.