Burning nerve pain that goes from my vagina, buttocks, and down leg

I have the same. You need to see a neurologist/neurosurgeon who will do an MRI in your pelvic area. It’s definitely nerves such as L1/2/3/4/5 or S1/2/3/4/5 .
Depending on which nerves are damaged, certain symptoms and certain parts of your buttocks, private parts, legs and feet are affected . Parasthesia is a burning sensation on the feet.
It feels like someone has poured hot oil over it and sensitive. Not sure how your toilet is, but it should affect this as well.
My particular condition is called Cauda Equina Syndrome, yours might be different.
Mine was from a motor vehicle collision when I was 20yrs old. I’m now 47.
27 yrs later my buttocks and half vag still numb, as well as the strip behind my legs from my buttocks to behind my knees is still numb, numbness has reduced maybe 2cm. My ankle reflexes are also absent.
This nerve pain is something terrible. Those that have not experienced nerve pain will not understand.
I’m so sorry for your pain, there are support groups. I’m not sure if you can be helped, but it’s too late for me now.
Bless you, all the best!

@zai I'm male and except for a heart that is electrically disordered (but repaired somewhat and doing fine), I have a wife who has what appears to be chronic pain, chronic autoimmunity (hypothyroid, IBS, rheumatoid arthritis, Celiac, etc....the list is dismayingly long) Lately she has shooting leg pain and lower back pain (the latter is cyclic and comes and goes two/three times each year). I suspect sciatica, or at least sciatic nerve inflammation, maybe impingement, spinal stenosis....something is going on. She reports numbness, and wondered about a significant clot, but there is no d-dimer enzymatic action revealed in blood assays.

It is odd that, as we gain enormous amounts of new knowledge, we often remain so puzzled by symptoms in a typical human body. I wish you, and my wife, all the very best a human can offer in Good Will (Kantian good will).

@zai I have exactly the same as you. My discs have slipped in the L3-L5 area. My last MRI showed severe central canal stenosis. Waiting for a call from my neurosurgeon, but apparently he told his receptionist that it is a non urgent call so it might not be for 6 months. Was there no surgery that they could have done to relieve your pain? Mine started about 2 1/2 years ago and has been steadily getting worse

@gloaming &
@mllyster

I think it’s crazy that we don’t know yet how to fix these things.
I certainly know for sure that our neurologists/orthopaedic surgeons etc haven’t had nerve damage and pain yet if they don’t treat your pain & sufferings as urgent!!! Because they & the rest of the world doesn’t know what kinda pain nerve pain is until they’ve experienced it themselves.
But to those who do suffer, hear are some tips & tricks I’ve learnt to ease the pain to a point where nobody even knows.
-Self-massage - always massage and press your own feet. Press areas that are sore and tender.
Under the numbness there is stagnant blood cos of bad circulation due to numbness. Always massage these areas. And imagine the blood flowing.
The lymphatic system then guts stuck as well in these areas.
One gets tight muscles and knots maybe in the one side of the buttock etc, so important to keep these muscles and blood moving.
- If you get a sharp pain anywhere, I always stab it back, press where the pain is etc.
- if your toes curl downwards, it’s as a result of your nerves for feet pinching. Press your toes flat on the floor or stand up when it happens to like invert it back and hold .
- same with the cramps, and muscle spasms due to nerve damage, especially in calves and maybe buttocks, press it and massage it so no pain all the time.
- drain lymphatic system NB,
- upper thighs and inner thighs massage .
- try lie on a yoga balloon ball backwards , so you’re inverting your spine and hold for awhile. Feel it undoing and stretching out,
- smoke cannabis or take the oil drops, it’ll help relieve the pain instantly.
- be mindful of how you’re walking or limping, and even if it hurts a little there or there, walk straight and upright like nothing is wrong with you.

@mllyster &
@gloaming

Mine was from a Motor vehicle collision with a truck, my sacrum is also cracked (healing fracture). I was a front seat passenger and wore a seatbelt, it was a head-on collision with a truck on a notorious Pass.
I can understand my condition cos I researched it. Infact, I’ve being researching this nerve damage my entire life and symptoms, that it was only at 40yrs old , I figured my condition and everything, I made appointment with the 1st orthopaedic team leader that saw me 6 months after the accident to show him my research and show him what’s wrong with me and I have all of these symptoms, these certain nerves are damaged and that’s why pain here or there and what the condition was called ie.Cauda Equina Syndrome (horse tail syndrome) imagine the nerves radiating from your spine outwards in your pelvic area etc. Google an image.
And that in fact, I am actually disabled and have a proper physical disability (nerves) as per the definition . And I want my Disability status if so. (Just to gain any benefits if possible therefrom, why not) .
He told me he is sorry for what I’ve been through, and reminded me again of his reasons for no surgery.
They decided not to operate after seeing MRI scans etc, cos they’ve not really had successful cases and they did not know all the things I showed him back then, etc.
so the nerves in my pelvic area was damaged on impact my knees against the motor and between the seat and my spine cracked right there where impact was.
Should they cut during surgery from the front, they would have to cut through my bladder n vajayjay, then the spinal cord and coccyx bone (tail piece of spine) and get to nerves (which are severed already), they may cut the wrong nerve or wrong place and then maybe I won’t walk permanently .
Should they cut through the back, would be cut through anus/ rectum and then the coccyx bone where nerves are as well.
So there would be a lot of damage to get to this place, L1-L5 & S1 to S5.
Etc . Etc

What I’m saying is learn your condition, google, Pinterest , research , know where these nerves are that are damaged physically on body etc.
mine is as a result of a Mv accident , I can’t figure out how you guys get the same injuries though???

One of the younger doctors on the team also
Had prescribed me medication .
Tegretol/ carbamezapine, Epilim(which are all epileptic medication , said should I fall backwards on bum or back and if nerves bang I might have a fit, hence the meds.
As well as Trepiline - which is actually a mild sedative , I think a little milder than morphine, but I realised in reality you can’t be groggy from meds so I stopped it.
Tramacet
Years later, I met the very same doctor in a mall parking lot, and we spoke bout the meds and whether they’re helping me, and I said doc, I do not feel any different whatsoever when taking the meds.
He said if so, then don’t take them, cos in the long run meds will damage your body more .

Make friends with your pain,
Know when you’re walking too much gonna flare up etc.
Accept it. It’ll help.

I wish all of you and wife all of the very best in this trial of life, from God.
Bless .
We can always support each other right here .
Cheers.

@zai thank you so much for your insight 🥰

I am sorry to learn of your suffering. You may want to consider an evaluation by a gynecologist.