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I have the same. You need to see a neurologist/neurosurgeon who will do an MRI in your pelvic area. It’s definitely nerves such as L1/2/3/4/5 or S1/2/3/4/5 .
Depending on which nerves are damaged, certain symptoms and certain parts of your buttocks, private parts, legs and feet are affected . Parasthesia is a burning sensation on the feet.
It feels like someone has poured hot oil over it and sensitive. Not sure how your toilet is, but it should affect this as well.
My particular condition is called Cauda Equina Syndrome, yours might be different.
Mine was from a motor vehicle collision when I was 20yrs old. I’m now 47.
27 yrs later my buttocks and half vag still numb, as well as the strip behind my legs from my buttocks to behind my knees is still numb, numbness has reduced maybe 2cm. My ankle reflexes are also absent.
This nerve pain is something terrible. Those that have not experienced nerve pain will not understand.
I’m so sorry for your pain, there are support groups. I’m not sure if you can be helped, but it’s too late for me now.
Bless you, all the best!

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Replies to "I have the same. You need to see a neurologist/neurosurgeon who will do an MRI in..."

@zai I'm male and except for a heart that is electrically disordered (but repaired somewhat and doing fine), I have a wife who has what appears to be chronic pain, chronic autoimmunity (hypothyroid, IBS, rheumatoid arthritis, Celiac, etc....the list is dismayingly long) Lately she has shooting leg pain and lower back pain (the latter is cyclic and comes and goes two/three times each year). I suspect sciatica, or at least sciatic nerve inflammation, maybe impingement, spinal stenosis....something is going on. She reports numbness, and wondered about a significant clot, but there is no d-dimer enzymatic action revealed in blood assays.

It is odd that, as we gain enormous amounts of new knowledge, we often remain so puzzled by symptoms in a typical human body. I wish you, and my wife, all the very best a human can offer in Good Will (Kantian good will).

@zai I have exactly the same as you. My discs have slipped in the L3-L5 area. My last MRI showed severe central canal stenosis. Waiting for a call from my neurosurgeon, but apparently he told his receptionist that it is a non urgent call so it might not be for 6 months. Was there no surgery that they could have done to relieve your pain? Mine started about 2 1/2 years ago and has been steadily getting worse