Bronchiestatis and tiredness

Posted by gaylesunflower1 @gaylesunflower1, Mar 21 3:57pm

Happy Sunday Everyone. I found that one of my triggers for sob is cold weather so other than the 3 days I go to work I stay home. Thank God for spring – finally able to leave house and go to church today. Trying to learn how to live a good life with this condition. One of my concerns is my tiredness. There are days when I don't feel tired at all then there are days when I am so tired. Does anyone else feel this way and what do you do to manage it. Thanks in advance for your comments

I have become, for the first time since simultaneously working wand going to college, a person who naps. If I have a busy day, I try to nap for 30 minutes before supper. If I have a "walking in wet cement" day, sometimes I sleep for an hour or a little more in the afternoon. I find better rest lying flat than in a recliner.
Like some of you, I get help with some of my heavy tasks like digging and hauling. Today it was pretty warm, so my neighbor and I pruned one winter damaged citrus tree and cut/pulled just one 4×4 patch of a damaged succulent.
My daughter has temporarily moved into our northern home and has made it her mission to get the whole yard spring cleaned . What a great help!
Sue

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@irene5

@sueinmn Perseverance and a GSD puppy! I’d rather be on the couch catching up on “A Million Little Things” or “ The Resident”Sue, but I made a decision to MOVE no matter how hard that may be! We had to put our beloved GSD down last week, and trust me – there is nothing like a puppy to get you out of bed and keep you going that extra mile to get things accomplished. Mornings are painful, but I think, for us, it was a good decision. MAC and sarcoid have taken enough from my husband and me! It is about having a goal Sue that makes all the difference! @irene5

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@irene5 I'm so sorry about the puppy. I had to do the same with my puppy and haven't gotten another fur-baby. I have my Samantha, a stray kitty who adopted me several years ago. We've had quite a life together. It's so different with a kitty, there are days I can't bend over enough and use my hands to dig and clean the litter. I don't like it, but I am allowing myself a free day if needed.

So much better than the several walks daily. What to do on my really down days…..so, my body really needs to NOT have a dog even if my heart does. Still need the rest. Sue, I have to get over my mother's training. Only get in be at bedtime, unless very ill. She really taught me well. Interesting, she never rested on or in bed or lying down, only in a recliner.

Well, I'm heading to bed, it's bedtime! Blessings and good-night. Elizabeth

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@sueinmn

I have become, for the first time since simultaneously working wand going to college, a person who naps. If I have a busy day, I try to nap for 30 minutes before supper. If I have a "walking in wet cement" day, sometimes I sleep for an hour or a little more in the afternoon. I find better rest lying flat than in a recliner.
Like some of you, I get help with some of my heavy tasks like digging and hauling. Today it was pretty warm, so my neighbor and I pruned one winter damaged citrus tree and cut/pulled just one 4×4 patch of a damaged succulent.
My daughter has temporarily moved into our northern home and has made it her mission to get the whole yard spring cleaned . What a great help!
Sue

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@sueinmn Is she for rent??? If do, you get finder's fee….blessings on you, elizabeth

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@ess77

@sueinmn Is she for rent??? If do, you get finder's fee….blessings on you, elizabeth

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Her sister, brother-in-law and nephews have first claim on her precious spare time, and we are second in line. By the time she finishes helping us, we have worn her out.
Sue

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@sueinmn Oh, Pooh! Won't you have a huge smile on your face when you drive up the drive?? Lovely, blessings to you. Elziabeth

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Everyone is correct…everyone is priceless…for sharing their private thoughts…and physical solutions. Yes we are subject to our human nature; including our illnesses and/or disabilities. What we DO have as compensation for these troubles, are our abilities to circumvent. Most all of the participants here offer good examples. Then…comes moments of reckoning. Last Wednesday, at my ID doc monthly visit, my hubby accompanied me. I thoughtfully and seriously asked this question (already very aware of the answer thanks to research) for my husband to “hear from the expert in the room”…”what is the CURE rate for this condition-MAC?” He answered…”we do not speak of CURE. We work with improvements…and helping the patient feel better…” so again (knowing the answer) I ask…but if you had to put numbers on a page…what would you record for “improvement that appears like a cure?” Well, he says, somewhere in the 40% range. The issue is reinfection after a period of culture conversion.

Thank you, I said. I needed my husband to understand that persons with conditions like these…are to deal with the reality of our physical, emotional, environmental, the whole ball of wax…consequences. We may have good periods, bad periods, or just times of pause…during existence. The beauty is what we can do with our attitudes and performance in front of those we love. Appraisal of the truth, with acceptance and or determination to be the best we can be during this course…and continuation of sharing (like on this forum)…makes us priceless individuals.
Thanks to all.
Regina

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Yes, I also get tired. I use to run but now walk. And that helps a lot to do as much as you can exercise wise. Do what you can. Yoga help and walking up steps. Take it easy but keep pushing yourself reasonably. H

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Sage advice hauoli.

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@sueinmn

Now that Spring is arriving (at least in some parts of the country) is everyone anxious to get outdoors? I'm thinking of you, @ess77, @irene5, @gaylesunflower1, @windwalker, @thomason, @thumperguy, @toni1132
Between bronchiectasis and pollen allergies, I'm not necessarily at my finest in this season, and fatigue tends to sneak up on me.

How do all of you handle that sudden "I'm done!" feeling when there is so much more you want/need to accomplish today? Short of dropping onto the couch for a snooze, what can Keep you going for a few more minutes or another hour?

Sue

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Oh, my gosh ! I can't believe this is your question of the day! I just was thinking that VERY THING !!! I've got so much to do and all of a sudden, I'm so tired, I want to fall on the floor and go to sleep !!!! It's everything to keep my eyes open. You know, I always thought this is just my vegging time of day, but it's more than that. I literally want to fall on the floor and go to sleep! Is this what? Bronchiectisis? MAC???

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@toni1132

Oh, my gosh ! I can't believe this is your question of the day! I just was thinking that VERY THING !!! I've got so much to do and all of a sudden, I'm so tired, I want to fall on the floor and go to sleep !!!! It's everything to keep my eyes open. You know, I always thought this is just my vegging time of day, but it's more than that. I literally want to fall on the floor and go to sleep! Is this what? Bronchiectisis? MAC???

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Ho Toni – It's Fatigue – with a capital F!
I think it's the very bronchiectasis itself, and the fact that our lungs must work harder than a normal lung just to provide air.
For 3 days we prepared & closed our tiny house to come home, but have learned to pace ourselves – we used to try to do it in a day. Then 2 14 hour days on the road (over 12 hours each day of driving time.) Today I turned off the alarm and slept in but I still feel limp. In about 10 minutes, I will follow my own advice and take a 30 minute nap, so I have enough energy to unpack a bag or two – only the coolers and immediate needs have even been removed from the car – but I did check Connect, answer the emails from 5 days, and balance my checkbook.

I have learned that when I feel like this, taking a pause is the most effective thing – so I'll skip my walk and let the laundry sit until tomorrow.

Have you tried either a "power nap" (20-30 minutes) or a longer one on these days? Does it help?
Sue

REPLY
@sueinmn

Ho Toni – It's Fatigue – with a capital F!
I think it's the very bronchiectasis itself, and the fact that our lungs must work harder than a normal lung just to provide air.
For 3 days we prepared & closed our tiny house to come home, but have learned to pace ourselves – we used to try to do it in a day. Then 2 14 hour days on the road (over 12 hours each day of driving time.) Today I turned off the alarm and slept in but I still feel limp. In about 10 minutes, I will follow my own advice and take a 30 minute nap, so I have enough energy to unpack a bag or two – only the coolers and immediate needs have even been removed from the car – but I did check Connect, answer the emails from 5 days, and balance my checkbook.

I have learned that when I feel like this, taking a pause is the most effective thing – so I'll skip my walk and let the laundry sit until tomorrow.

Have you tried either a "power nap" (20-30 minutes) or a longer one on these days? Does it help?
Sue

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Well, this is interesting. I figured it was just my "clock" and it was overworking. I have always crashed at 2:00pm. But, I've always plugged along and the tiredness passes. But now? I get exhausted about 11:00am and just whenever. I never thought about the Bronch. . I figured it was the MAC. ???? I've never been able to power nap. I always felt more tired after I slept. So I don't. … Thank you for your insight, Sue !!! I need all the help I can get !!

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@toni1132

Oh, my gosh ! I can't believe this is your question of the day! I just was thinking that VERY THING !!! I've got so much to do and all of a sudden, I'm so tired, I want to fall on the floor and go to sleep !!!! It's everything to keep my eyes open. You know, I always thought this is just my vegging time of day, but it's more than that. I literally want to fall on the floor and go to sleep! Is this what? Bronchiectisis? MAC???

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I have always been a busy person and just lately have been experiencing the same thing! I have gotten so tired feeling when doing chores etc and was wondering if it is getting older? Now am thinking it is the bronchiectasis I have. Thanks for bringing a new light on the subject.

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