Bronchiectasis and MAC specialist - Do you travel to one? Insurance?
I was recently diagnosed with bronchiectasis. It's likely I have MAC as well though my first culture did not show any MAC (The pulmonologist thinks it was "masked" by the "dominate" haemophilus influenzae that I had at the time the culture was taken.)
I am grateful to have found this support group. You have given me a world of useful information, and it's great that this sight is searchable with key words or topics on here. My question is how do you know if you should find a more BE/MAC experienced pulmonologist? How do you weigh this with travel and expense? I hadn't even heard of National Jewish Health until joining this group. Do those of you who are under their care travel from out of state? Does your insurance pay for any of the care/visits? Do you also see a local pulmonologist? There appears to be a bronchiectasis and NTM center about 80 miles away from my home but I just don't know if I can be traveling that far on a regular basis. I realize this condition is chronic and that I will need to see a specialist for years to come. I am 58 years old and like all of us hope to be as healthy as I can for many, many years. I have been quite healthy up to this point in my life and I am not only overwhelmed with this diagnosis but also with navigating the doctors/specialists/health care system.
Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.