Ewing Sarcoma with Brain Metastasis: What are some treatment options?

Posted by erasahai @erasahai, Mon, Jun 8 3:37am

In metastatic brain tumor, what is done after surgery, radiation and ten cycles of chemotherapy?

@erasahai, welcome to Mayo Clinic Connect. Brain metastasis is cancer that started in another part of the body and spread to the brain. It’s sometimes called secondary brain cancer or a metastatic brain tumour. Brain metastasis is not the same as cancer that starts in the brain (called primary brain cancer).

Can you tell me more about your brain metastases? What type of cancer was the primary cancer?

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@colleenyoung

@erasahai, welcome to Mayo Clinic Connect. Brain metastasis is cancer that started in another part of the body and spread to the brain. It’s sometimes called secondary brain cancer or a metastatic brain tumour. Brain metastasis is not the same as cancer that starts in the brain (called primary brain cancer).

Can you tell me more about your brain metastases? What type of cancer was the primary cancer?

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Thank you so much for the response!
Actually my 18 year old son was diagnosed with Ewing sarcoma of spine in S1, S2, S3, in September 2016.He underwent 17 cycles of chemotherapy till December 2017,and one month radiation, and it got cured. He remained cancer free till October 2019, when he complained of double vision in his left eye, after PET CT and MRI, it was confirmed that he had two tumors in the brain, they performed surgery in November 2019 and removed about 80℅ of the tumor which was behind his left eye, he also got radiation for 10 days, and is currently undergoing 9 th cycle of chemotherapy, doctor says he will give him one more cycle and then put him on oral tablets. My son's general health is good, we are now anxious what holds for us in the future.

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@erasahai

Thank you so much for the response!
Actually my 18 year old son was diagnosed with Ewing sarcoma of spine in S1, S2, S3, in September 2016.He underwent 17 cycles of chemotherapy till December 2017,and one month radiation, and it got cured. He remained cancer free till October 2019, when he complained of double vision in his left eye, after PET CT and MRI, it was confirmed that he had two tumors in the brain, they performed surgery in November 2019 and removed about 80℅ of the tumor which was behind his left eye, he also got radiation for 10 days, and is currently undergoing 9 th cycle of chemotherapy, doctor says he will give him one more cycle and then put him on oral tablets. My son's general health is good, we are now anxious what holds for us in the future.

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Between 2016-2017, he received VAC IE, and now they are giving him Topotecan and Diaoxen

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@erasahai

Thank you so much for the response!
Actually my 18 year old son was diagnosed with Ewing sarcoma of spine in S1, S2, S3, in September 2016.He underwent 17 cycles of chemotherapy till December 2017,and one month radiation, and it got cured. He remained cancer free till October 2019, when he complained of double vision in his left eye, after PET CT and MRI, it was confirmed that he had two tumors in the brain, they performed surgery in November 2019 and removed about 80℅ of the tumor which was behind his left eye, he also got radiation for 10 days, and is currently undergoing 9 th cycle of chemotherapy, doctor says he will give him one more cycle and then put him on oral tablets. My son's general health is good, we are now anxious what holds for us in the future.

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@erasahai, thank you for explaining more of your son's diagnosis and treatments. I modified the title of your discussion and moved it to the Cancer group here: https://connect.mayoclinic.org/group/cancer/

I did this to connect you will other members who have experience with Ewing Sarcoma, like @mgashaj @kristennursepatient @madstrong @suzanneb and @erikahamilton.

It must be a blow to you, your son and your whole circle of family and friends when you heard the cancer had come back. I can imagine that you're anxious to know what the future may hold. It must be additionally challenging to be getting treatments in this time of COVID-19. Does your son like to have you accompany him to treatment? Does the hospital allow family members?

REPLY
@colleenyoung

@erasahai, thank you for explaining more of your son's diagnosis and treatments. I modified the title of your discussion and moved it to the Cancer group here: https://connect.mayoclinic.org/group/cancer/

I did this to connect you will other members who have experience with Ewing Sarcoma, like @mgashaj @kristennursepatient @madstrong @suzanneb and @erikahamilton.

It must be a blow to you, your son and your whole circle of family and friends when you heard the cancer had come back. I can imagine that you're anxious to know what the future may hold. It must be additionally challenging to be getting treatments in this time of COVID-19. Does your son like to have you accompany him to treatment? Does the hospital allow family members?

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Yes, either I or my husband accompany him during his treatment.

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@erasahai

Thank you so much for the response!
Actually my 18 year old son was diagnosed with Ewing sarcoma of spine in S1, S2, S3, in September 2016.He underwent 17 cycles of chemotherapy till December 2017,and one month radiation, and it got cured. He remained cancer free till October 2019, when he complained of double vision in his left eye, after PET CT and MRI, it was confirmed that he had two tumors in the brain, they performed surgery in November 2019 and removed about 80℅ of the tumor which was behind his left eye, he also got radiation for 10 days, and is currently undergoing 9 th cycle of chemotherapy, doctor says he will give him one more cycle and then put him on oral tablets. My son's general health is good, we are now anxious what holds for us in the future.

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@erasahai God is great we thank God for the life of your son

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Thank you, we need all the blessings 🙏

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@erasahai, you may also be interested in this discussion:
– Needle Biopsy for Bone Cancer https://connect.mayoclinic.org/discussion/needle-biopsy-for-bone-cancer/?pg=1#comment-395994

In this discussion, @spooz2 also talks about metastatic bone cancer and the questions s/he plans to ask the oncologist. Difficult questions to ask, but important to know the answers.

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