Brain cancer: Oligodendroglioma

Posted by robinjenkins70 @robinjenkins70, May 14, 2016

Any oligodrenglioma 2 diagnosis?

Yes

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I have had it for 6 years……. it’s in the parietal section of the brain

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I was diagnosed with an Oligodendroglioma IDH-mutant, 1p/19q-codeleted (grade 2) tumor. I had some seizures and I was found out I had a tumor in the ER. I underwent awake brain surgery And I am just finishing proton beam radiation therapy. Next, I will start my chemotherapy. I'm not looking forward to it. When I first woke up from my surgery I needed a lot of help with pretty much everything. Now, aside from driving, my brain has basically rewired itself and I'm pretty much able to care for myself again. I'm in my 40's so the loss of independence was a pretty big deal. Thank god for my wonderful caregivers, I appreciate them so much! They never made me feel like a burden and I'm so thankful for that.

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@barb789123

I was diagnosed with an Oligodendroglioma IDH-mutant, 1p/19q-codeleted (grade 2) tumor. I had some seizures and I was found out I had a tumor in the ER. I underwent awake brain surgery And I am just finishing proton beam radiation therapy. Next, I will start my chemotherapy. I'm not looking forward to it. When I first woke up from my surgery I needed a lot of help with pretty much everything. Now, aside from driving, my brain has basically rewired itself and I'm pretty much able to care for myself again. I'm in my 40's so the loss of independence was a pretty big deal. Thank god for my wonderful caregivers, I appreciate them so much! They never made me feel like a burden and I'm so thankful for that.

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Hello @barb789123 Welcome to Mayo Connect! Nice to e-meet you here, although I am sorry to read of your diagnosis. I am Scott and my wife was also diagnosed with an oligodendroglioma in her 40s. I was her caregiver.

She, too, after her surgery was greatly impacted, but after intensive PT and OT she, too, regained much of her abilities. It's amazing to read of the advances made in treatment of this type of tumor since her diagnosis — proton beam was just being discussed at the first of her illness.

As a caregiver I appreciated your comment on how much you appreciated their help. Often that is not communicated! What was it you appreciated the most from your caregivers?

Strength, courage, and peace!

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