Botox for Migranes

Posted by Sundance(RB) @sundance6, May 6, 2019

Despite some of you saying not to try Botox Therapy for Migranes, I did anyway! What a mistake! Toxins such as Botox don't set well in my body.
It has been almost three weeks since my treatment. I have been having the worse headaches than before I started. I have been having severe nick and shoulder pain. I get very lathargic and depressed because I have them all the time. Doctor said it just happens.
Can someone give me some feedback as to if they have had the treatment and any side effects you may experienced. I go to bed with a headache and wake up with one.
I won't do another treatment!
Sundance

HI,
I had severe crippling cluster migraines for almost 7 years. The traditional Dr's tried out every new anti-seizure and migraine drug that came out. The last thing in their bag was the Botox. 25 shots in the head later and it did not help at all. they said when a new drug came out they would let me know.

I finally was referred by a friend to a local Naturopath. He worked thru diet and nutrition. In 6 weeks they were down to 1/2 and in 6 months they were totally gone. I've only had a couple in the last 10 years.

Everyone's issue and body are different. And at the time, insurance would not cover it, but it was worth every penny to be cured.

We called him the Voo Doo Dr. (He thought it was funny) because he used the a method called Applied Kinesiology (muscle testing).

Many people (esp traditional Dr's and me at first) said it was/is quackery – I completely disagree now.
Traditional western medicine ran about $200,000 worth of testing and drugs on me and came up with nothing.

He "cured" me in 6 months.
Our bodies are incredible and able to repair themselves IF we have not already become toxic in areas due to our western lives.
He actually said – my goal is to get your body back to a baseline where your own immune system can heal your body.

I was at the point where I would try ANYTHING, so what did I have to lose – my migraines I guess.

Carl

REPLY
@cbrackle

HI,
I had severe crippling cluster migraines for almost 7 years. The traditional Dr's tried out every new anti-seizure and migraine drug that came out. The last thing in their bag was the Botox. 25 shots in the head later and it did not help at all. they said when a new drug came out they would let me know.

I finally was referred by a friend to a local Naturopath. He worked thru diet and nutrition. In 6 weeks they were down to 1/2 and in 6 months they were totally gone. I've only had a couple in the last 10 years.

Everyone's issue and body are different. And at the time, insurance would not cover it, but it was worth every penny to be cured.

We called him the Voo Doo Dr. (He thought it was funny) because he used the a method called Applied Kinesiology (muscle testing).

Many people (esp traditional Dr's and me at first) said it was/is quackery – I completely disagree now.
Traditional western medicine ran about $200,000 worth of testing and drugs on me and came up with nothing.

He "cured" me in 6 months.
Our bodies are incredible and able to repair themselves IF we have not already become toxic in areas due to our western lives.
He actually said – my goal is to get your body back to a baseline where your own immune system can heal your body.

I was at the point where I would try ANYTHING, so what did I have to lose – my migraines I guess.

Carl

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I am inclined to agree that the natural path is the best way to go…and that is the way I am targeting. However, I have tried some of their ways and have not received much relief. Acupuncture does not work for me but massages work. Pain medications don't work but a variety of massages work. Each person needs to map out what works and what does not work for them. I too have had thousands of dollars worth of tests and medications over many years. I now need to go through prior authorizations through my insurance company to get treatments and medications to keep me stable. I micromanage my care only because I am so fragile.
I am glad your VD Doc was able to help you. He has been able to help you gain your full self and it's worth every step of the way.

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I am a 71 year old active female. I had a severe headache since the fall of 2013 and tried everything for relief. Most pain killers were out of the question due to GERD issues. Oxygen therapy worked for a while, but it became less and less effective. Last February I had a Botox treatment for migraines. My head felt better, but my face changed. My left eyebrow arched severely and looked very strange. It was so obvious that people asked what happened. I decided Botox was not for me. I wrote online to the doctor telling him about the result. He said that he could place the needles in different positions so that it would not be a problem again. May 2nd I decided to try it again. Unbelievably, I have not had a headache worse than level 1 (out of 10) since then. I feel like I got my life back again!

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You're lucky with the Headaches. I did not have the eye droup, but I had the worse headaches of my Life for two weeks! There is another drug that I understand may be better than the Botox. My doctor offered no assistance with my headaches. Will not do another treatment.
Sundance

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@nurseheadakes

I am inclined to agree that the natural path is the best way to go…and that is the way I am targeting. However, I have tried some of their ways and have not received much relief. Acupuncture does not work for me but massages work. Pain medications don't work but a variety of massages work. Each person needs to map out what works and what does not work for them. I too have had thousands of dollars worth of tests and medications over many years. I now need to go through prior authorizations through my insurance company to get treatments and medications to keep me stable. I micromanage my care only because I am so fragile.
I am glad your VD Doc was able to help you. He has been able to help you gain your full self and it's worth every step of the way.

Jump to this post

I have come to the same conclusion on my own care! I had a visit with some old friends last week. One gentleman had 17 different drugs perscribed to him.
You have to finally say No! I have had body work done on me for 40 years. Have not had it recenly. I need to go back to it.
Thanks,
for the advice.
Sundance

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IF BOTOX doesn't work OR you as a patient do not want to go the route of injections in the forehead, neck, and shoulders, then perhaps the next option would be the newest drug called 'aimovig/ally' which the neurologist can provide information about for you. It is advertised on TV all of the time. This medicine is also a program that allows you to give the medicine to yourself. It's not a scary as the BOTOX and it has good results I am told. I may consider going this route now that I have relocated to a more sunnier location, have fewer migraines and have managed to control my overall health to make the jump. With a new physician that specializes in Migraines, this would be a good time to weigh the pros and cons. Remember, looking at all of the possible ways to control your day to day life and what options you can take to manage it with the best controls is the target here. Evaluating what brought on a migraine will allow you to seek out the cause and the eliminate it to the best of your abilities.
I am glad you were able to re-evaluate your options by talking with your doctor about the effects brought on by the Botox and seeking to change it. That is good communication both for you and for the doctor. Good Job and I know it will continue to help you.

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Botox didn't work at all for my 8-12 migraines monthly. I tried Amovig and had severe nightmares. My neurogist indicated that he hadn't heard of that problem. The nightmares were very upsetting me. I would have to get out of bed or awhile until I got settled. on one of the cases I went back to bed only for the nightmare to come back. The nightmares were about people in my family getting killed. I have now tried Emgality for two months. I'm down to 3-4 migraines a month. I've had no side effects.

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@nurseheadakes

IF BOTOX doesn't work OR you as a patient do not want to go the route of injections in the forehead, neck, and shoulders, then perhaps the next option would be the newest drug called 'aimovig/ally' which the neurologist can provide information about for you. It is advertised on TV all of the time. This medicine is also a program that allows you to give the medicine to yourself. It's not a scary as the BOTOX and it has good results I am told. I may consider going this route now that I have relocated to a more sunnier location, have fewer migraines and have managed to control my overall health to make the jump. With a new physician that specializes in Migraines, this would be a good time to weigh the pros and cons. Remember, looking at all of the possible ways to control your day to day life and what options you can take to manage it with the best controls is the target here. Evaluating what brought on a migraine will allow you to seek out the cause and the eliminate it to the best of your abilities.
I am glad you were able to re-evaluate your options by talking with your doctor about the effects brought on by the Botox and seeking to change it. That is good communication both for you and for the doctor. Good Job and I know it will continue to help you.

Jump to this post

Thanks for the info on the other drug. Will get with my doctor. As for what causes them that is still up in the air! All of my symptoms and start of all these headaches/migraines go back almost a year. They all point to Lyme Disease. Have only had one doctor say that is what it is! (He was a microbioligist from down south and is very farmiliar with it) I live in a Third World State, New Mexico, recent study shows we have the worst medical industry in all 50 states. Have gone through blood tests but have come up negative, but I hear that from most people say about the test. It was my neurologist who decided to treat them as migranes.
I just completed a 1,000 mile business trip over four days. I'm really hurting, all of my Lyme Disease symptoms come back from the stress of the trip. Have been down for 3 days since I got back. I took a chance taking the trip, but had forgotten how bad the symptoms can be.
Sundance

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@russy

Botox didn't work at all for my 8-12 migraines monthly. I tried Amovig and had severe nightmares. My neurogist indicated that he hadn't heard of that problem. The nightmares were very upsetting me. I would have to get out of bed or awhile until I got settled. on one of the cases I went back to bed only for the nightmare to come back. The nightmares were about people in my family getting killed. I have now tried Emgality for two months. I'm down to 3-4 migraines a month. I've had no side effects.

Jump to this post

Thanks for the other info. I just posted how I was doing. My own fault for putting myself in the sitition I did. Just very hard to change my life because of all this! With the exception of Stage IV colon cancer 20 years ago I have been a healthy and active person for over 70 years. I beat the cancer, it was easier than this!
My next avenue after these drugs is seeing a Physcrist. Maybe I need mental help to deal with all of this?
Sundance

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@sundance6

Thanks for the info on the other drug. Will get with my doctor. As for what causes them that is still up in the air! All of my symptoms and start of all these headaches/migraines go back almost a year. They all point to Lyme Disease. Have only had one doctor say that is what it is! (He was a microbioligist from down south and is very farmiliar with it) I live in a Third World State, New Mexico, recent study shows we have the worst medical industry in all 50 states. Have gone through blood tests but have come up negative, but I hear that from most people say about the test. It was my neurologist who decided to treat them as migranes.
I just completed a 1,000 mile business trip over four days. I'm really hurting, all of my Lyme Disease symptoms come back from the stress of the trip. Have been down for 3 days since I got back. I took a chance taking the trip, but had forgotten how bad the symptoms can be.
Sundance

Jump to this post

Lyme's disease is a catch-all disease that may or MAY NOT be what you have. Exhaustion, headaches, stress, jet-lag and disruption of your circadian schedule [ https://www.nigms.nih.gov/Education/Pages/Factsheet_CircadianRhythms.aspx ] will contribute to some of the symptoms you have been feeling just recently. But perhaps, all you have is a virus that is commonly found in all of us – is causing you to feel ill. Headaches/migraines are one thing but the other symptoms you are manifesting need to be addressed. Taking care of YOU should start with good food and liquids including: asparagus, blueberries, radishes, celery, cinnamon, garlic, apricots, and onions – these specific foods will kill the viral cells and help the healing process as discussed in Medial Medium by Anthony William's book. Zinc, thyme, lemon balm and licorice root are some of the herbs that he mentioned as well. Drinking plenty of water with lemon in it will keep you hydrated. Rest, write our your symptoms, diary your headaches and rethink your diet, day to day activities.

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Did the physician give you any 'break through medication (triptan) for taking to control your headaches? When you put on the BOTOX program, there will be headaches in between the injections and they are suppose to give your Imitrex to control them. If the physicians is certified to give the injections, he/she was not following protocol in writing a subscription for you. The script calls for having enough of the medication so that you can have one pill – take it and if the headache didn't go away, two hours later you could take another one. Call the doctor right away and let him know that the BOTOX was NOT helping. Also….some doctors do not give the higher doses of 200 mg but give only 150 mg (total amt) that could help you more. It is up to the doctor as to the amount that they give. ALWAYS call the doctor if the medicine is NOT working for you within the week post injections. And make sure you have standby medicines for ''Break-through" medicines to get you through until the next Injection in 12 weeks. As time goes by – you will need less and less of this. BUT both you and the physician need to understand how the program works.

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Was on the Triptan for a couple of months, did no good. Have let the dr. know about my constant and horrible headaches. She told me to take Tylenol. That was a joke. Then she said she had not heard of anyone with my reaction to the Botox. As I said our state is not known for our medical prowis! It has really gotten frusturating dealing with this.
No one has an answer or will not go out of their area to find anything out about what I have. I have had offers from friends in both Houstan and Phoenix to come stay and go to one of the Specail clinics.
Just can't do it now.
Sundance

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