Anyone else been diagnosed with a borderline ovarian tumor?

At 29, I had stage 1a borderline ovarian tumor (they classify it as borderline malignant on my chart), had ovarian torsion, ovary and fallopian tube was removed. The remaining ovary was preserved, but they keep pushing me to do a hysterectomy. I have check ups every 3 months (sometimes more if there’s a new cyst they have to monitor), but it’s been every month so far because they stagger the blood work (CA125 and CA19-9), physical exam (rectal and vaginal) and vaginal ultrasound. I’m almost at my 2 year mark and they told me after that, monitoring can be reduced to every 6 months.

I feel the same as you do, it’s hard to “continue” with life when recurrence is this cloud hanging above you at all times. They told me the rate was 20%, but when I did more research, the recurrence rate is higher the younger you are. I didn’t realize this when I had my surgery (which was an emergency) and I thought I was going to be “cured,” Instead I have to do follow ups for the rest of my life, it’s really hard mentally. My doctor said I should be grateful because I don’t have to do chemo, but I feel angry and tired and constantly worried.

I underwent total abdominal hysterectomy, tumor debulking and cancer staging for borderline ovarian tumor 3 months ago. it is state IIIA2. will be followed every 6 months with CT and CA-125. I have been off work, and will go back this coming Monday. For the first several weeks my doctor was saying i had ovarian cancer. it was not until the final pathology report that the diagnosis was confirmed as borderline. it was such a relief not to need chemotherapy. i am unbelievably grateful. yet i still feel a lot of uncertainty. my doctor said there is a high chance of recurrence due to how wide spread the tumor was. i am having difficulty getting going in my life again. it is difficult not to brace myself for another set back. anyone else feel so different after treatment and have trouble getting going in life again?

I was diagnosed with borderline serous ovarian tumor stage IIIA2 three months ago. I underwent TAH, cancer staging, tumor debulking, omentectomy, lymphadenectomy, peritonectomy. I will have a CT scan and tumor markers every 6 months. Can anyone comment on how they felt physically after surgery. I still feel a lot of pressure on my bladder and physically tired. Abdominal tenderness as well. I don’t know anyone who has had this extensive of a surgery. I would love to hear what others have felt like and what I might expect in the months to come.

@naturegirl5
Yes ma’am. My surgery is scheduled for Thursday.
I had an appointment with fertility specialist on Friday, he did a ultra sound and found 2 more complex cyst on my left ovary 🙁

@kirstinleigha This is very good news and I'm so glad that your questions were answered. Is the surgery scheduled yet?

Leigha, this is good to hear. Having one's questions answered soothes the racing mind. When will you be having surgery?

@candybeason45 I sent you a direct message.
I had an appointment today and they found something on my left ovary 🙁

My surgery is Tuesday and I'm so scared for what they will find. It's giving me anxiety & I already take anxiety medicine 😪 I pray u find out some good news your surgery will be a day or 2 after mine I will be sure to let u know what I find out. It definitely is scary and I know how u feel. The closer Tuesday gets here the more scared I get!

@candybeason45
Hey,
I just found out today that my next surgery will be next Thursday the 2nd.
I am so nervous about what he will find!
I remember your surgery is coming up as well

@candybeason45
Yes still having problem after the surgery.
I agree, I think something was missed. Thank God I’m with an oncologist who know what he is looking at.
I’ll keep ya posted, and if you feel up to it, let me know how your surgery goes!