Book recommendations for coping with hereditary cancer?

Posted by poupette @poupette, Jul 16 4:52am

I am survivor and also a previvor being a PTEN carrier, a very rare genetic mutation. Already had 2 breast cancers, and may have also an endometrial one (it is being investigated) plus too many other suspicious things. 🙃

Anyway, I am wondering if you know about a book regarding coping and resilience to live with hereditary cancer? I have found only the general ressource below, I am looking especially for psychological coping suggestions.
https://www.press.jhu.edu/books/title/12612/living-hereditary-cancer-risk

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Colleen Young, Connect Director | @colleenyoung | 1 day ago

Good question, @poupette. I found this blog post that included a few recommendations of books related to hereditary cancer some with a specific focus on BRCA.

- Must-Reads for Women with Hereditary Cancer Risk https://blog.geneticsupportfoundation.org/index.php/2020/05/22/must-reads-for-women-with-hereditary-cancer-risk/

It also included a web link about talking to children in the family
- How to talk to your kids: https://mariekeating.ie/cancer-information/brca/talking-children-teenagers-brca/

I also found this Mayo Clinic article about hereditary (breast) cancer and the psychological and social impact of genetic testing.
- Genetic testing for breast cancer: Psychological and social impact https://www.mayoclinic.org/diseases-conditions/breast-cancer/in-depth/genetic-testing/art-20047563