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Bone issues after Covid
After a year i finally got diagnosed with Covid 19 long hauler. Iam on medications now I have horrible joint swelling and pain it almost feels like it’s in my bones. Has anyone had any issues with their bones or diagnosis with bone problems Covid related? Any information will help
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Good morning. I am 3.5 years in and yes the bone and joint issues have been awful. They wax and wane. I have blood abnormalities that show dysfunction in the megakaryocytes. Please look up studies related to this. I still need a walker for medium distance and a wheelchair for Long distance. Lots of weakness. For the pain I have started PEA. It takes a few weeks to start working on the nerve pain but it helps a bit. Some folks are getting osteoporosis but I have not been tested. Getting good medical care is still elusive and LC clinics don't have it together yet. I hope you get it figured out. Maybe you can access a dexascan to check your bone density?
Thank you so much for your information. My heart goes out to you as well.
I would suggest taking vitamin K2 that takes the calcium from the arteries into the bones. Here is a link to a Cleveland Clinic article on K2: https://health.clevelandclinic.org/vitamin-k2
I have had "mystery" joint pain for decades. I recently found out about dystonia. In my over simplified terms, dystonia is caused by the "circuit board" in our brain going "wacky" that impacts the nerves and joints. There is no test or treatment for dystonia, although doctors will experiment with drugs. There is a wide amount of types and variations in dystonia to the point that no two cases are alike.
Here is a link to an article on dystonia at the Cleveland Clinic: https://my.clevelandclinic.org/health/diseases/6006-dystonia
It is known that caffeine and alcohol can aggravate dystonia and make symptoms worse. I have given up both and the pain is 95% gone. For me, that meant giving up coffee, green tea, cocoa and chocolate. I would suggest giving up caffeine and alcohol for a couple weeks and see if it makes any difference. Good luck.
A long hauler,then suddenly,one night,felt like someone poured gasoline on my right foot. Now ,, finally after over a year, my new doctor understands, the virus attacked my right leg nerves. And my arthritic knees ...much more painful. My new doctor, a real sweet heart,and brilliant,put me on amitriptyline. Which i now know is the gold standard for nerve pain. A miracle.... New use for an old cheap drug . It works! Very kind regards Suzanne Smith RN