What was your experience with bone marrow biopsy?
The hematologist/oncologist I saw yesterday talked to me about having a bone marrow test done. I have heard that it is very painful and no anesthetic is given. Can anyone tell me about your experience having it done?
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I had a terrible, painful experience back in 2012..think th he young doc had only worked on corpses! 5 punctures...no record of results! For convenience, now switching doctors for ET managed with anagelide. He ordered a biopsy with mild sedation after hearing my story. Hoping for positive, less painful outcome!
@ruth73
Greetings! Welcome to the Mayo clinic connect. Thanks for sharing your bone biopsy experience. I’m so glad it was not painful for you. Good for you for asking for what you need in the way of anti-anxiety medication.
Do you mind my asking what prompted your bone biopsies?
I have had two of them. They definitely numbed the area so I wouldn't feel anything.
I also asked them to give me an anti-anxiety med as I was so nervous. My experience then was painless and I was relaxed!
@exon9, thanks for sharing your experience with bone marrow aspiration/biopsy. I added it to this collection of experiences that are helpful for people who are preparing for their first bone marrow biopsy:
- What was your experience with bone marrow biopsy?
https://connect.mayoclinic.org/discussion/bone-biopsy-pain/
Today I had this procedure. Sept 9th 2024, at Fred Hutch Cancer Center in Washington state.
April 2021 I received two Pfizer Covid shots. Soon after I started to get weak, lost 15 lbs (looked like a skeleton) and my platelets became elevated.
Faster forward to Nov 2022 my doctor referred me to Fred Hutch. Fred Hutch diagnosed Essential Thrombocytosis with CALR exon 9 mutation. I started Hydroxyurea 1000mg a day, then 500mg a day, and now 500 mg every other day.
My doctor wanted to verify with a bone marrow asperation/biopsy.
Here's my experience.
I arrived for my appointment and of course they have to weigh you and get your vitals. After that they draw blood, and the nurse who will do the procedure talks to you and tells you what she's going to do and why it's being done. After that you lay face down on the table and lower your pants a little and the nurse feels around on your back hip and finds the right spot. She marks it with an X while the other technician is getting the needles and containers ready for the samples. Next is a local shot to numb the area, then after a while another shot to numb inside your body. That shot gave me a little jolt because she was numbing the bone at that time. When I was numb the nurse got another needle and started doing the aspiration. After the aspiration she took tissue from the bone.
The part from numbing to end was probably around 10-15 minutes. It didn't hurt and didn't hurt last night or this morning. Going to the dentist for a filling is worse than this procedure.
PS. I'm a believer in the Lord Jesus Christ, so a lot of prayer went before my procedure. If we have faith in Jesus, God promises to get you thru whatever comes your way.
Although I’ve certainly heard stories on both end of the “ouch” continuum, my take away is that like everything else, one has to advocate for your personal preference. A conversation with your physician about other health concerns and risk may make sedation less appealing, but all other things being equal, patients should advocate for what they want. Justification should be provided as to why your wishes can’t be fulfilled. We tend to acquiesce when given pushback as though we are being cowardly, but we are all different with different fears and pain thresholds. All legitimate considerations.
I couldn't agree more. Everyone is different and will have a different experience. However, we are trying to spare others dread which is always present when they hear about others unpleasant expeariences. Some of us did ok and maybe it can help relax you so you (and others) don't anticipate. It's worth a try.
Everyone is different. I don't think there's a right or wrong, just different. Regarding the reputation, I think my wincing, grimacing and audible distress (yes, there were sounds of audible distress - don't judge me LOL) was more because I was anticipating worse to come. Luckily, worse didn't come. But again, everyone is different and needs to do what's right for them.
I think those of us who will be having a BMB should demand that the person doing it is very skilled. A less skilled person might rely on the patient being sedated to mask being overly rough. The doctor who did mine when I was 14 did not traumatize me. I believe only a topical anesthetic was used. I do not remember any injections other than the penicillin shot I had had the previous day in the back of my hip for an anterior BMB.
My experience was like Legacyrock. I think sedation would be overdoing it and unnecessary. The whole procedure is much less than its reputation.