Blood work and misdiagnosed!?!

Posted by leslieb24 @leslieb24, Oct 6 3:04am

Kinda long, but I was diagnosed with psoriasis when I was an older child, 12 or 13 I think it was. I am now 31, female for reference, and I am at my wits end! As a teen and young adult I self medicated for pain because no one took my pain seriously, including my parents, but I became sober when I was 19. Since then I have spent years attempting to get doctors to listen to me about my pain and my body. I have seen 4 rheumatologists who have all done the same tests including ANA, ANA titer, Sed rate, all of the big tests. Most of them come back abnormal but when I do a follow up and some of the blood work comes back normal I get told nothing is wrong and they send me on my way. This time the rheumatologist literally goes "it'll take a few weeks for most of the blood work to come back, but so far everything looks fine, I can't see anything wrong but I will send you to the pain clinic for pain relief." I DON'T want pain pills, I want help. I need someone to listen! The blood work came back this morning and of course as always my ANA is abnormalities, my titer is high, my SED rate is normal but on high end, my C3 is high, etc etc. I messaged my doctor with the response of "follow up with pain clinic and take a multi vitamin." I am so heart broken, I just want my life back, I want to be able to chase my daughter and nephew around. I just want normal or at least answers. Please tell me I am not crazy and if there is anyway absolutely possible to get them to actually listen to me!!!!!!

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Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Oct 11 1:01am

@leslieb24
Where is your pain and how do you experience it?
Does anything make it better - or worse?
Do you take any medication now?
ANA test is not always easy to interpret- it could just mean that you have some nonspecific inflammation in your body.

artemis1886 | @artemis1886 | Oct 12 8:12am

I have this problem. My rheumatologist sent me to neurologist test for small fiber neuropathy. He learned recently that over 40% autoimmune problems also have small fiber neuropathy. He had just went to a lecture by Dr Oaklander. The treatment IVIG. They have not diagnosed my autoimmune problem since age 10. They gave me IVIG therapy until age 18 when I fell off my parents insurance. Age 62 I am back on IVIG therapy. It has helped with my dizziness and loss of balance plus my left leg quit dragging couldn’t lift if.