Blood Donor: Is it safe to donate blood if you have a blood condition?
Has anyone ever checked if it is safe to donate blood? I am O- and used to donate regularly. I was considering starting up again then got my diagnosis. My main concern is O- is used to sick babies and I wouldn't want to make them worse.
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@beebo
I hear you. I spoke with some physician friends from the teaching hospital locally about giving blood and also organ donation because of my blood disorder. They said that they would not use any byproduct discarded from my body. They did convince me that I would be useful as cadaver research or training for new physicians so I’ve opted for that. I’d like for this old body of mine to be useful to somebody.
@pmm Patty and @beebo I find this a very interesting topic, and one I hadn't considered completely. Since getting my first driver's license in [ahem!] 1969 there has always been a donor sticker. Over the course of the years various health concerns have found me but I never really considered how they might affect donation of blood or solid organs!
From Health Resources and Service Administration, here is a link to follow: https://www.organdonor.gov/learn/who-can-donate
From the National Institute on Health: https://www.cc.nih.gov/bloodbank/can-i-donate
Ginger
Thanks for sharing this Ginger.
My PV diagnosis was made the same year that I retired. When I was working, we had blood drives at least twice a year and I always participated. I’m sure that I had this condition long before my diagnosis.
I never heard anything from them that they detected anything unusual about my blood. So I wonder if they were in fact using it even with the unusual blood count numbers.
For years, I donated blood every 6 weeks.
Then one August, I learned I had a high platelet count.
I was scheduled to donate blood that September.
I called to ask the Red Cross if high platelets made me ineligible to donate. I was asked if I had a diagnosis.
When I said no, they told me it was fine to donate.
But after being diagnosed by an oncologist in October, I was told by the Red Cross that I could never donate again.
To me this suggests how badly blood is needed.
But until our cancers are better understood, ruling out any chance our blood or organs might do harm, donation is something we must not do.
@janemc that’s exactly what my doctor friends told me. I’m going to ask more questions though to see exactly how those dots get connected since I don’t have an infectious disease.
I'm afraid the answer may be that nobody knows!
My MPN, ET, was identified 100+ years ago, but so much about it is still a mystery.
Thanks to everyone who asks questions and brings enlightenment to all of us.
@janemc I used to donate blood regularly, also. In 1988 I was diagnosed with a mild form of Systemic Lupus. At my next blood donation, I told them about my new-found condition. They offered me a tag that gave me a choice to donate but not use, or donate and use, since they didn't have an answer for me. I chose donate but not use. At the next donation I was told I couldn't donate any longer. It was heartbreaking for me, as I had just tested to use bone marrow to donate, and they had a patient matched to me. That had to be cancelled, also.
My father was a big supporter of blood donation, well into his 70s.
Ginger
You have a disease and will always have PV, regardless of your numbers. If you were to donate your blood, there is a good chance you would give someone PV. Would you really be happy to know that?
If they tell you that you cannot donate your blood, they tell you that for a good reason.
While it's nice to want to donate blood and your heart is in the right place, you have to think about what your blood would do to another human being. I don't think you would want that on your conscience.
You raise a very good point here. I had really never considered that the PV might be transmittable because of it being a condition caused by a mutation. I was equating that to be the same as it being genetic.
But you’re right. If the experts are saying it shouldn’t be done, there’s a good reason not to.
Thanks!
One of my physician buddies sent me this. Small numbers but certainly noteworthy.
https://pubmed.ncbi.nlm.nih.gov/27575725/