Anyone have experience with HHT or Osler-Weber Rendu?
I have an inherited condition called Olser-Weber Rendu. It’s a bleeding disorder that both my mom and my grandfather died from complications of this disease. I am 62 and I am found to be anemic often. My mom died at 70.
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Welcome @drewb and @dpmoot.
@dpmoot, I found this information about pulsed dye laser treatment from the website that @kchugg11 recommended.
– Pulsed Dye Laser Treatment https://curehht.org/resource/pulsed-dye-laser-treatment/
Did you decide to do the pulsed dye laser treatment on your lip?
@drewb, what is being done for the bleeding in your small intestines?