Bladder wall thickening/terrified it's cancer

Posted by rivergirl @rivergirl, Aug 31, 2023

Hello,
I had a CT scan done last week as a routine check up by my oncologist (I'm a breast cancer survivor). The scan was fine, except it showed bladder wall thickening and inflammation in right ureter. The way my oncologist hustled me off to my urology nurse practioner the very next day and said, quote, it MIGHT BE CANCER, terrified me-I have medical PTSD anyway and her words were a big trigger for sure.

I saw my NP the next day since he's been working with me on OA bladder. I've done one tx of Mona Lisa and pelvic floor therapy and it helped but what really helped is that I finished with 11 years of taking an anti-hormal for breast cancer and I have much more control now.

My NP tested me for a UTI (negative, and I knew that-I've had UTIs) and sent my urinalysis off for a cytology and I should have them this week. He wants me to get another scan that looks closely at the urinary tract system. I don't particularly want another scan without a second opinion and if it is cancer then I want to work with Mayo so I've faxed all my urology records to the Scottsdale clinic already. He also wants me to get a cytoscopy but earliest was October.

I read the CT report results and it says nothing about mass, suspicious for tumor, or cancer anywhere.

I have no blood in my urine, it's clear, I have no pain anywhere, and since stopping the anti-hormonal I've only gotten up once a night. I don't have a problem urinating other than a bit of urgency that has improved with tx.

I'm a fit, active, normal BMI (20) 64 y.o. female uni prof that does hot yoga and pilates and hikes, and this latest bomb in my life really shook me. I am a non-smoker, but I am considered a Downwinder (fallout exposure from an above ground nuclear test in July 62-I was 2).

I was also dx this summer with IBS-D by my Mayo gasteroenterologist who is helping treat that.

Finally I should add that my husband is currently being treated for locally advanced prostate cancer at Mayo.

I hope someone can talk me off the cliff even a little, and give me some hope. I'm already convinced that I have cancer because of the urgency of my oncologist and the long face that my NP had when I talked to him.
Thank you < 3

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@ggarrepy

I had bladder pain that I thought was a bladder infection. When that turned out negative, I thought maybe it was interstitial cystitis. I followed their recommended diet for a several months. Didn’t help. Then I started seeing blood in my urine. At times, quite a lot. That’s when I pushed for a CT and got the diagnosis.

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does a CT Scan of your detect bladder cancer?

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