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Bladder Cancer Group: Introduce yourself and connect with others
Welcome to the Bladder Cancer support group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with bladder cancer or caring for someone with bladder cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
Feel free to browse the topics, use the group search to find answers to your questions or start a new discussion.
Pull up a chair. Let’s start with introductions.
What type of bladder cancer were you diagnosed with? What treatments have you had? How are you doing?
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@colleenyoung Colleen and other members, The second pathology showed extensive lamina propria invasion with focal abutment of the muscularis propria; definitive muscle invasion couldn’t be ruled out. Imaging (MRI pelvis, CT chest/abdomen) shows no spread. Given tumor volume, depth, and staging uncertainty, my team is treating this as early muscle-invasive disease and recommending neoadjuvant cisplatin-based chemotherapy (guided by Univ Miami /Sylvester GU Medical Oncology) followed by radical cystectomy at a high-volume center, with curative intent (performed at Cleveland Clinic FL). I’d appreciate hearing from others who faced a similar T1 vs early T2 gray-zone decision.
Had left kidney removed in 2024 that had cancerous tumor. Six months later had 2 small tumors removed from bladder. Jan 2026 Cystoscopy revealed several high grade papillary urothelial tumors on bladder. Dr. stated he removed all of them and started BCG treatment. My first one was last Friday January 23, 2026. So far only very mild side effects. Dr Krishnamurthi at the Cleveland Clinic Main Campus has done all my surgeries.