Bladder Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, May 17 3:57pm

Welcome to the Bladder Cancer support group on Mayo Clinic Connect.

This is a welcoming, safe place where you can meet people living with bladder cancer or caring for someone with bladder cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

Feel free to browse the topics, use the group search to find answers to your questions or start a new discussion.

Pull up a chair. Let’s start with introductions.

What type of bladder cancer were you diagnosed with? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

Sue | @swh | Aug 13 8:05pm

In reply to @dldinsd "to Sue@swh I just finished my 6th treatment today, after 1 TURB. I had no reactions..." + (show)

Thanks for the encouragement. Best wishes. This waiting is hard.

dldinsd | @dldinsd | Aug 13 7:18pm

In reply to @swh "How did your 6 week bcg treatments go? Mine start Friday 8/16 and I'm getting a..." + (show)

to Sue@swh I just finished my 6th treatment today, after 1 TURB. I had no reactions or problems the entire time even though I was expecting the worse. I was concerned because I never got a full dose - 1/2 dose at first treatment and 1/3 dose at the other 5. I was told they've done testing and these doses are sufficient. We'll see when I have my cystoscopy on 9/24. Good luck with yours starting 8/16.

Sue | @swh | Aug 12 10:05am

In reply to @scott232 "71 Taylor. Found on routine physical urine test. I had two surgeries( doc had said there..." + (show)

How did your 6 week bcg treatments go? Mine start Friday 8/16 and I'm getting a little anxious. I've had 2 turbts (HGT1) and feel back to normal now so not looking forward to bcg.

suka1 | @suka1 | Aug 12 9:38am

In reply to @colleenyoung "@suka1, how did the appointment with the second urologist go? Did they offer additional treatment options?" + (show)

I never saw him. I just received a referral to an Oncologist that I see Wednesday and Moffitt Cancer center. Luckily, Moffit has already moved my appointment up from Sept to Aug 23rd.
Thank you for asking!

scott232 | @scott232 | Aug 10 7:07pm

In reply to @tacoma "Hi Scott. My name is Taylor and was just told I have high grade bladder cancer..." + (show)

71 Taylor. Found on routine physical urine test. I had two surgeries( doc had said there would be two ) and now ending my 6 week bcg immunotherpy. Will go back in with scope in late sept to see if cancer has reoccurred
Fingers crossed!! Good luck with surgery.

tacoma | @tacoma | Aug 10 1:40pm

In reply to @scott232 "Hi I’m Scott. Diagnosed with cancer several weeks ago. Had 1st surgery where tumor removed from..." + (show)

Hi Scott. My name is Taylor and was just told I have high grade bladder cancer surgery will be on Aug.20th I’m wondering how old you were when you found out you had the cancer? I’m 47

schew5515 | @schew5515 | Aug 10 9:36am

Praying for you!

tacoma | @tacoma | Aug 9 10:42am

In reply to @johns92118 "well today is the day, i get to go in for the bladder check, see if..." + (show)

Good luck today!!

talltxlady | @talltxlady | Aug 9 8:16am

Please let us know how you're doing.

johns92118 | @johns92118 | Aug 8 8:05am

well today is the day, i get to go in for the bladder check, see if c is back a bit nervous ,

View More View Less

Please sign in or register to post a reply.