Bladder Cancer Group: Introduce yourself and connect with others

Hi there, my name is Melissa, I'm 55 yo. Was diagnosed with NMIBC of the aggressive type in 11/21. I've taken about 27 rounds of immunotherapy (BCG). The last BCG was in March. My cystoscopies remain negative. At the beginning I did have one that was suspicious and had to undergo another surgery in 2022 for it, but they have all stayed negative thank God. I go back in September to MD Anderson for another cystoscopy and my doctor said we would decide at that time if I will need any more BCG or not.
I do have a host of other problems as well. I have 3 autoimmune diseases (Hashimotos, Reynaud's and Sjogrens syndrome), plantar and palmer fibromatosis, severe back degeneration with scoliosis, DDD and more (can't remember it all!)
I am happy to be here and feel blessed this aggressive bladder cancer has not showed it's ugly head again. Stay strong y'all! We are strong people :)) 🙏

Thank you You too.

I, too, have bladder cancer and am presently going through immunotherapy, but just one treatment so far, with many weekly sessions to follow. The Mayo Clinic was unable to treat my cancer, so I am using a local cancer/hematology clinic. At age 82, I have little hope for long-term survival and will not continue with the treatments if the side effects are too severe.

I wish your sister the best of luck. She is in my prayers!

My sister is terminal stage of Bladder cancer. Chemotherapy and Immunotherapy did not work at all.
She will take PADCEV infusion next week. This medicine has various side effects.
She lives in Tokyo alone. Right now, she does not have urine and self catheterization.
She is 68 years old. I hope she will be able to live as much as much as possible.