Bladder Cancer Group: Introduce yourself and connect with others

i have a question for everyone. i hve had bladder cancer twice and so far its not back again i did have kemo last time so maybe......my question is i dont seem to e emptying my bladder when i go i do have cathaters and use them my last dr said in the morning and evening. i am wondering if i need it during the day too. i an due gor cystopy next month. ant answers?? thanks john

My name is Delavan. I was diagnosed with stage Ta bladder cancer in mid-October. I had a TURBT performed at that time. No complications. I am going in for a cystoscopy next week. It is being done at Northwestern Memorial in Chicago. The urologist is highly qualified, experienced and did a fellowship at John’s Hopkins. Much to my surprise he ordered no intravesical therapy, NOT even the standard BCG. I don’t want to lose my bladder. I understand that Adstiladrin provides tremendous results. Has anyone had it? Did Medicare pay for it?

They can put a man on the moon why couldn't come up with something that is not so intrusive.?

I am a 73 year old male. Pretty healthy most of my life except in the early 80s I did have cancer. After surgery and therapy I have been cancer free.
Starting in my late 60s, I have gone down hill a lot. I had 2 bacterial infection which was resistant to most antibiotics. It too 3 months in hospital to cure. Now I am fighting dementia, neurology problems and now most likely bladder cancer. Jan 7 is my biopsy.

I have been reading on this site for a couple weeks now and gained a lot of knowledge. Makes me less scared of what might happen to me.

Hi @brucec81, checking in. Things can move very fast and be overwhelming. Did you learn more about the type or grade of your cancer after the surgery and PET scan? When will you start chemo and radiation?

Hello Colleen
Does Mayo clinic provide Emsella Chair ‘treatment’ as part of treatment for Stress incontinence for men following prostate surgery ( TURP or HOLEP)
If not , Can Mayo urology comment the efficacy ( ups and downs of using this chair. Most private beauty clinics suggest 6 sessions of 30 mins each over 3 weeks. ( ie 2 sessions every week) I can get this done at any clinic near me
I just want an input from Mayo as they are at the forefront of new innovation. Thus Chair has been in use since 2012 so surely Mayo will have some input whether it will do good for my condition.

I had my HoLEP surgery done at Mayo clinic 12 months ago and have been having regular kegels with PT for, but I still have the annoying stress incontinence ! Please help. I just need Mayo’s research or thoughts about this Emsella Chair . I just don’t want my present condition to worsen if I decide to use Emsella Chair. Thanks for your help.

Merry Christmas and happy new year.

I appreciate you being so open with your information. May I ask which drug you were on for immunotherapy? It looks like Opdivo will be the way I have go. I was diagnosed in June with Stage 2 muscle invasive at age 54. I did chemo for three months prior to my surgery. I'm very nervous about my reaction to the Opdivo but understand everyone is very different in how they respond to it. Fingers crossed it will go smoothly. Nausea can be so difficult! Happy holidays and take care of yourself.

First of all, you have my sympathy. I'm a male, age 82, and was dignosed with stage 4 bladder cancer nine months ago. I took immunotherapy for five months, which was quite brutal because I couldn't eat, had to force feed myself, etc. Anyway, I terminated the treatments and am now taking wholistic Fenbendazle (500mg). I quit the immunotherapy six months ago & am now recovering from the immunitherapy treatments, taste buds, neuropathy in my hands and feet. In a nutshell, I believe that the immunotherapy may be good for younger people, but not when in our 80s. Just my humble opinion!

Yes, women are not diagnosed as quickly as men from what I understand and this makes us more likely to be farther along once it's caught. Very frustrating to think it could have been caught earlier. I just had my bladder replaced with a neobladder in November. Unfortunately I didn't get the all clear and will start immunotherapy next week. I do feel better mentally knowing the bladder is out though. All the best to you!!

I'm scheduled for 6 cycles of cisplatin / gemcitabin with durvalumab. Then bladder/prostate removal with lymph nodes. Then 6 cycles of durvalumab. Praying that it hasn't spread through my lymph nodes.