Bladder Cancer Group: Introduce yourself and connect with others

I hope your care team can come up with a plan that provides you with hope. I agree that it is the uncertainty of not knowing that is so difficult to experience. Best wishes to you.

I waited 3 weeks for my pathology results, even though they were sent with a rush on them. Apparently the rush was not put on the vials so they were not rushed 🙄 the worst part is the waiting. I had 3 of the 4 tumors removed on December 20th but no appointment with the urologist until January 22nd. I am aware I will more than likely be having a radical cystectomy as the 1 tumor remaining is still 5cm into my bladder wall which is aggressive high-grade. So why all the waiting, while it hasn't spread further? Just so frustrated.

Hello, I am a 74 year old female who was recently diagnosed with bladder cancer. It appears I have a very large tumor that is suspicious of urothelial cancer. I will be getting a biopsy soon to confirm this but was suspected in the mri with contrast and cystoscopy. I am very nervous about all this. I would like to hear from others who have been diagnosed with same. Thank you.

Hi. I had 9 inductions of BCG this past yr. Cysto found 2 tumors small My cancer is nimbis High grade. 3rd Turbt scheduled for next week. Im then scheduled for Gen/Dox sometime after Turbt. Has anyone used any other chemo treatment besides Gembiticde/Dox. Thanks

Oh no! I'm sorry to hear he had to go through that. The experience is stressful enough without all of that. I wonder if there's another medical condition he has that prevents getting the port for him. I had the port put in one week and started chemo the very next.

The neobladder surgery was very tough, especially the first four weeks after. You have to be in good health otherwise to do the neobladder (I'm 55 yo) and picking an experienced surgeon is key. I'm very happy I did it. I've been blessed with the results so far.

Hi Sue, yes he did have an MRI at an outside company. We have not seen the results yet. His new oncologist referred him back to neurology. He is having a hard time with incontinence. Having to wear pads & diapers. Administering the chemo is a huge problem to get him to finish his treatments. How long did your hubby have his port before treatment started? Thank you for your support.

Hi Jo, how was the surgery and how do you like the neobladder? The oncologist at the beginning denied the port. And the new oncologist also denied the port??? Anyway my brother is very hard to come back for treatment b/c of the awful time he had with the nurse putting in the IV. It rang on the monitor for about 1 hour. It bubbled right away and I alerted the nurse and she ignored for an hour. Finally I had to get another nurse to put a new one in. Well she searched all over his poor forearms making this treatment unbearable. We are trying to get the doctor to order & schedule the port asap. How soon did you start treatment after your port was put in? Thank you so much. Jo

I received word today that I will be administered intravesical therapy in the form of Gemcitibine/Docetraxel chemotherapy. Inductive therapy will occur over a six week period. Chemo will be administered once a week. I am then going to receive chemo once a month for two years. If anyone who has gone through this therapy could share their experience with it, especially side effects and long term effects, it would be greatly appreciated.

Thank you for the prayer.

Good luck. It’s a relatively short procedure. It may take an additional day or two to receive the surgical pathology report. That, in large part, drives treatment decisions. I received my surgical pathology report today with results from the TURBT that I underwent last Friday. I will undergo chemotherapy after the wounds are healed. At least my doctor now has a game plan. Hope to hear how things go for you. I am a person of faith. I will say a prayer for you. Best.