1. < Bladder Cancer

Bladder Cancer: High grade

Posted by barneythe2nd @barneythe2nd, Apr 21, 2018

I have been diagnosed with high grade bladder cancer, with recommended bladder removal. I would like to know whether the odds of survival are high enough without such drastic surgery, which has been defined as quite risky.

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jmhope | @jmhope | 3 hours ago
In reply to @colleenyoung "@jmhope, just checking in. I hope your appointment went well. How are you and your husband..." + (show)
@colleenyoung

@jmhope, just checking in. I hope your appointment went well. How are you and your husband doing? Are you feeling confident in the treatment plan?

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Hello ! ☺️

Our experience at Mayo was absolutely the best ! We had all of our questions answered . The urologist and oncologist were very informative , honest and we couldn’t be more thankful . We are very happy with the treatment plan so far .

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Moderator
Colleen Young, Connect Director | @colleenyoung | 1 day ago
In reply to @jmhope "Hello , I am new to the group . My husband just diagnosed with aggressive high..." + (show)
@jmhope

Hello , I am new to the group . My husband just diagnosed with aggressive high grade bladder and prostate cancer invading the muscle. We have it first visit at Mayo this Tuesday. Not sure what to expect . Can anyone share kind of how the first visits go ? We are coming from NM. I’m hoping they’ll coordinate care with local oncologist for chemo treatments.

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@jmhope, just checking in. I hope your appointment went well. How are you and your husband doing? Are you feeling confident in the treatment plan?

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1 reply
edge41 | @edge41 | Jul 8 8:08am

If or when the cancer gets through the muscle wall and to the lymph nodes, it will spread to other parts of the body.

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edge41 | @edge41 | Jul 8 8:05am

Thanks, I really appreciate it. I was reading that kidney issues have the same symptoms, the doctors were saying that my kidneys are about 50%. The doctor's diagnosis better be right with my bladder.

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mmwade62 | @mmwade62 | Jul 6 3:22pm

Always get a second opinion. I was diagnosed a year ago with high grade. I lost a kidney but still have my bladder. Unless it’s in the wall of the kidney I would definitely hold off. Every three months I get a cystoscopy and every three months they remove cancer. I don’t know how much time I have, but I make every day count and I am now here a year older still and feel fine. I go through immunotherapy I just stay on top of it.

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chrisrcolbert1066 | @chrisrcolbert1066 | Jul 6 11:26am

No, BCG First
What Hospital told you this?

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ella76 | @ella76 | Jul 5 1:18pm
In reply to @amu45sin "I had high grade papillary tumor that was removed. In March. The urologist did not suggest..." + (show)
@amu45sin

I had high grade papillary tumor that was removed. In March. The urologist did not suggest removal.

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Why not? Was anything done?

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jaxfl | @jaxfl | Jul 4 11:45am

TMT is complicated with many treatments and often results in salvage RC anyway.

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adohracapella | @adohracapella | Jul 4 7:46am

I understand the dilemma . After 10 years of treating low grade transitional cell bladder cancer now the bladder is not functioning anymore and the cancer has become high grade and can be aggressive
If I don’t have bladder removed at my age 79 years it would probably wouldn’t be done ar an older age.
The cancer can become low grade with medication instilled immunotherapy so as to speak.
If the oncologist feels you would benefit from chemotherapy and radiation to preserve the bladder then why not try that ?
Get all the options before you make the decision
It is not necessarily risky to have bladder removal
Depends on your age medical conditions etc
I wish you good luck !!!!

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jaxfl | @jaxfl | Jul 3 2:58pm

I started adjuvant ddmvac four weeks after RC.

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