I was diagnosed with stage 4 colon cancer that had spread to my liver near the end of 2015.
Initially, surgery was not an option but chemotherapy worked and got it to the point that they were able to remove part of my liver, wait a few months, then remove another part of the liver as well as the original colon tumor. The surgeries took place in 2017.
Part of the surgery and aftermath was that my gall bladder was removed and the main bile duct was destroyed, so they had to put in an internal/external biliary drain. Then, about a year later, some sort of pocket started filling up near the liver, so they had to put in a transhepatic drain (this happened about 2 years ago).
I am curious to know if anyone else has had to deal with this. I have had two drainage tubes sticking out of my torso and draining into bags for two years now and am just not sure what the end game is or if there even is one. I have asked my interventional radiologist team and the goal at some point is to internalize the biliary drain, but no one seems to be able to tell me what the plan is for the transhepatic drain or what sort of timing can be expected or estimated.
I am quite happy to be cancer free and am, overall, doing well, but it's really starting to annoy me that I can't go swimming or sleep on one side of my body or just move freely without risking my tubes and drainage bags getting in the way.
Maybe there's nothing that can be done other than continue to wait until it resolves on its own, but I keep hoping there is some intervention that can be done to solve this.