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Bile Duct cancer help, for my mother.
I am posting on behalf of my mother. She is 63 years old and was diagnosed with Cholangiocarcinoma (Bile Duct Cancer) 20 months back. When we detected it, the cancer had already spread a lot. She underwent whipples surgery, followed by 6 cycles of Gemcitabine + Capecitabine. Then another 15 rounds of radiation. We thought that would be it but the cancer spread. So we did 6 cycles of Gemcitabine + Cisplatin + Durvalumab (immunotherapy) at first the results were good but the last scan showed the cancer has spread again.
I am running out of options for her treatment, I am going to do the Dendritic Cell Vaccine for here, the first vial comes next week. I know it's results are mixed but at least it's some treatment with minimal side effects. Also since I live in India, we are planning to do some Tibetan herbal medicine, again not sure if it works.
I am writing this post since, I am at a dead end, is there any other for of treatment i could pursue, maybe something i missed, since it's not available in India. Read about Ivermectin and Fenbendazole but that I am unsure off, since there doesn't seem to be a proper regime for it, or at least i haven't come across any.
I am reaching out to whoever sees this or can guide me further as to what i can do in her case, though I know the possibility of her survival beyond the next 8 months is bleak, but if there is a medication or treatment I am missing I don't mind pursuing it. Thanks in advance .
P.S. there is TP53 gene mutation with HER2 negative
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@isranderia, it is clear from your message that you love your mother very much and want the best for her. Cancer is horrible. I see that you are looking into alternative therapies and that you acknowledge that the evidence is mixed at best, and as yet research is not available for these approaches in the treatment of bile duct cancer. Here's some guidance from Mayo Clinic experts that might help your evaluation of these therapies:
- Natural vs. safe: Why the two aren't the same https://www.mayoclinic.org/tests-procedures/complementary-alternative-medicine/in-depth/natural-vs-safe-health-remedies/art-20587690
- Mayo Clinic on use of ivermectin or other dewormers to treat cancer https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/mayo-clinic-on-use-of-ivermectin-or-other-dewormers-to-treat-cancer/
- Can you spot a fake health article? https://www.mayoclinic.org/healthy-lifestyle/consumer-health/in-depth/spot-fake-health-articles-misinformation/art-20587692
More and more cancer centers and oncology specialists are open to discussing and integrating complementary medicine in programs called Integrative Medicine or Integrative Oncology. Integrative medicince is offered at many cancer centers of excellence, including Mayo Clinic.
Here's a link to more information about Mayo Clinic's Integrative Medicine programs
– Integrative Medicine and Health https://www.mayoclinic.org/departments-centers/integrative-medicine-health/sections/overview/ovc-20464567
In this Mayo Clinic Q & A Podcast. Dr. D'Andre talks about how integrative oncology can be incorporated into conventional cancer care at Mayo Clinic.
Is your mother being see at a major cancer center in India? Do they have an integrative medicine department to help guide you?
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2 ReactionsYoung Lady. I just read your storey & believe me I can see your pain and stress you have put your self though, But if you don't stop you will be the one who is going to need help. I am very very sorry about your Mother and the hell she has been though, but take a step back and ask yourself is it what your Mother really want to have all that treatment or is it only you how wants her to have it.
Let your Mother go just be by her side and hold her hand to show her to love her.
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1 ReactionI understand, what you are saying, and i do accept that there is a strong possibility that she might not have much time but i keep feeling i should not give up without trying everything i could. I dont know how to shake the feeling. But yes really thank you for your concern, the slowly fading away is harder to watch
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1 ReactionYes as I said it would be hard for you but at the same time it is harder for your mother because she is the one who in pain not only from the Cancer but the treatment as well. Just so you know I have Liver & Pancreatic Cancer my self & believe me it is no fun fighting Cancer of any sort.
There is a young lady here in Australia where I am and she is only 38 Yrs old and she has 3 young Kids as well & she has the same Cancer as I have. She also comes from you country & she has no one here to help support her but her Hubby. Your Mother has had a good life up until now & it is hard to stand by and watch her like you are, but at the same time do you really think you are helping her ????? I'm not trying to tell you what to do that is up to you but I can't see any point in you trying to find a Cure for now, Just show her your love by been there for her is what I think she wants you to do May God Bless Her for been a great Mother & having a Lovely daughter like you are
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1 ReactionI'm so sorry to hear about your mother. And I hope the advice here on Connect is of some use. I'm also writing you from the viewpoint of my being a mom with cancer who has wonderful daughter. And I want to reassure you that the mere fact of your being there and showing love and support is a great aid to you mom, whether she can express it or not. My daughter, husband, and best friend have been my "committee" for three years. They have helped me make all decisions and supported me in every way. But just seeing my daughter, getting a hug, seeing her smile...these things are beyond words. I'm very lucky she lives near-by, has her own family who I love, and has grown-up to the point where I don't worry (too much) about her. I know from your post that you want to do more. I want to reassure you that you are already doing something no one else can do--being yourself and loving your mother in your own special way.
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