bilateral hip replacements due to dysplasia

Posted by kristinderee @kristinderee, May 18 3:16pm

Hello,
I'm 49. One year ago I had a simultaneous THR due to hip dysplasia. It was the single most horrible thing I have had to endure in my life. I was promised a life of painfree living. Since the surgery a year ago, I have burning on the outside of my thigh and cramping. I also feel like I am sitting on a rock. I am so frustrated. I have done PT four times s a week for 9 months. I can walk fine- but I have lost most of my flexibility, my range of motion is changed, and I am completely confused as everything contradicts. The Dr says, "No restrictions". My PT says I DO. Who do I believe?! I am desperately seeking ANYONE who has had THR due to dysplasia. How did YOUR recovery go???? Thank you

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My suggestion is to see another surgeon. I saw four surgeons before I met the prince. I was super upset when the third surgeon got angry with me and wouldn’t do my surgery after the insurance company approved the whole thing. I found out three years later that it was a good thing because the fourth surgeon said he does all of the other guys revisions! Years later, when a friend of mine was going to see him, I found that he had a lawsuit for neglect! I had my first hip replacement and loved it so much. I gave the surgeon a check for the second one. He didn’t want to do it Because my cushion wasn’t all the way gone, but it was the right decision. When I got done with both hip replacements over a couple years unfortunately it did not end my pain because my pain was coming from my lumbar spine. I have degenerative disc condition and my spine deteriorates. My hips were great and I was glad to have a lot of pain relief and able to get back to my aggressive work, but it was disappointing that my back pain was only getting worse. Eventually, four years later, I had lumbar surgery fusion and a bunch of stuff done at L3, L4, L5, and that took a monkey off of my back. But will even with that surgery I was not pain-free. A good dose of my pain comes from my tailbone and nobody wants to touch that. So I’ve taken low-dose opioids for 30 years and a muddle along. Maintaining a regiment of exercise is super important and it gets rid of a lot of pain. I’ve done everything known to man that the medical industry offers and at 68 I have to accept that my body is degenerating as it ages. I just roll with the punches. I have good days and not good days and if I get too much in pain, I do Cortizone and epidural but they have to find the right spot. Then I’m good to go and then I can exercise a lot and I can keep my core strong. My biggest advice is that you’re going to have to figure out where your pain emanates. And you should get second and third opinions. You wouldn’t believe the wild and crazy diagnosis disease I’ve had. I was with Neurology for 20 years and the head of Neurology did not want to do surgery until I pooped on myself and I said fine go home and take the opioids and he said no I’ll send you to orthopedic medicine and there I met my prince Surgeon! Don’t give up hope keep plugging away and get more information. I know it’s a pain in the ass, but that’s the world we live in right now. I went into menopause early and that seemed to really do a number on my body deteriorating. So I am on bioidentical hormone replacement therapy and bone medicine strengthening medicines and rotate around with everything else at 68 it’s not a life for the week at heart however, what are the options? My suggestion again is to go to a lot of doctors and learn. Which ones are the good ones and which ones are the lazy ones and which ones are the bad ones and which ones are gonna work on your behalf! And don’t give up hope!!

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That is a tough one! Maybe you could ride a stationary bike? I would suggest going to a variety of doctors for a pathway. From what you wrote, you have no “hope“ going on. You didn’t mention your age so my recommendations might not be that appropriate, however, I have visited pain management,, kinesiology, doctors, rehabilitation doctors, PT, and rehab. I have done acupuncture, (chiropractic I don’t recommend.) Botox, and every other modality. The things I found most effective are trying to rebuild the structure to my body, which for me at 68 means taking bioidentical hormone replacement and the bone medication’s for a few years. If you are not in motion or active, your body is just gonna atrophy as well as degenerate. So you’re gonna have to talk to a few doctors and get a plan that can keep your circulation going or you’re gonna have more necrosis. In the meantime, I recommend MFR. I pay out of my pocket as well as use what Medicare will cover and I like the local guy who doesn’t take insurance best. He helps breakdown the myofascial muscles fascia which is glued together, and I have more movement and less pain and my body is more usable. I go twice a month and it’s been almost a year and although it’s very painful for me, I find that it’s really working and I am much more mobile.. The inner workings of my body get much more circulation and toxins are expelled better. I get the impression I am going to be doing this for the rest of my life (I’m 68) I’ve had two total hip replacement lumbar fusion and two cervical fusion with rods, but I am really active with all of that. And I push my doctors as hard as I possibly can to make them work for me so I can be my best. I wish you good luck because I know you’re in a difficult situation.

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I love that you mention building back structure. Many of our orthopedic and musculoskeletal problems are tied to malalignment! Finding the right ways to get back is a personal-individualized activity. Doctors don't have all the answers... which is why we need to work them!

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