bilateral hip replacements due to dysplasia

Posted by kristinderee @kristinderee, May 18 3:16pm

Hello,
I'm 49. One year ago I had a simultaneous THR due to hip dysplasia. It was the single most horrible thing I have had to endure in my life. I was promised a life of painfree living. Since the surgery a year ago, I have burning on the outside of my thigh and cramping. I also feel like I am sitting on a rock. I am so frustrated. I have done PT four times s a week for 9 months. I can walk fine- but I have lost most of my flexibility, my range of motion is changed, and I am completely confused as everything contradicts. The Dr says, "No restrictions". My PT says I DO. Who do I believe?! I am desperately seeking ANYONE who has had THR due to dysplasia. How did YOUR recovery go???? Thank you

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My wife had Total bilateral hip replacement and 4 revisions thereafter! Really focus on your body. If you attempt a movement and it doesn’t feel right, stop! My wife had surgery through her backside area as well as through the groin. For a period of time there were restrictions after going through the backside due to fear of hip popping out of socket. Again, my wife says, do what feels right to you; it’s your body and no one knows it better than you!

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My orthopedic surgeon said restrictions I am 9 years post op.
Restrictions
No stairs
Do not cross legs can dislocate hip
already had that it hurt like I can’t
Explain the pain They kept me sedated for a week for the joint to quit bleeding then surgery also it fractured actebulum and pubic ramus.
I can’t walk long distances
Can no longer ride my horses had to sell
Can’t get up and down from gardening without help
There is other restrictions just can’t think of them right now. Yes, it feels like you are sitting or laying on a ball.
Sometimes it hurts.

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@artemis1886

My orthopedic surgeon said restrictions I am 9 years post op.
Restrictions
No stairs
Do not cross legs can dislocate hip
already had that it hurt like I can’t
Explain the pain They kept me sedated for a week for the joint to quit bleeding then surgery also it fractured actebulum and pubic ramus.
I can’t walk long distances
Can no longer ride my horses had to sell
Can’t get up and down from gardening without help
There is other restrictions just can’t think of them right now. Yes, it feels like you are sitting or laying on a ball.
Sometimes it hurts.

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My wife had hip surgery both from the back side as well as near the groin area. It is the backside that applies these restrictions. However, today they tell her she has no restrictions; two years later! Just an FYI

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@dannyandebbie

My wife had hip surgery both from the back side as well as near the groin area. It is the backside that applies these restrictions. However, today they tell her she has no restrictions; two years later! Just an FYI

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Mine is through the side. Not Back. It’s in the shape of a Y my incision. Most people have not fractured and dislocated their hip replacements while in the hospital. I am a licensed RN not everyone has the same restrictions but crossing your legs can dislocate their hip replacements hip. My fracture was caused my a nurse putting me on the bedpan wrong. It dislocated new hip fractured my actebulum and pubic ramus. It took over a year and a half to be able to walk again. I had to stay in the pool during that time. My diagnosis was osteoporosis and avascular necrosis ( bone not getting enough blood flow and the bone dies and crumbles.)
I struggle to this day with that hip. My right hip replacement no problems but it occasionally needs to be injected due to my autoimmune disorders I have three.

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@artemis1886

Mine is through the side. Not Back. It’s in the shape of a Y my incision. Most people have not fractured and dislocated their hip replacements while in the hospital. I am a licensed RN not everyone has the same restrictions but crossing your legs can dislocate their hip replacements hip. My fracture was caused my a nurse putting me on the bedpan wrong. It dislocated new hip fractured my actebulum and pubic ramus. It took over a year and a half to be able to walk again. I had to stay in the pool during that time. My diagnosis was osteoporosis and avascular necrosis ( bone not getting enough blood flow and the bone dies and crumbles.)
I struggle to this day with that hip. My right hip replacement no problems but it occasionally needs to be injected due to my autoimmune disorders I have three.

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That is a tough one! Maybe you could ride a stationary bike? I would suggest going to a variety of doctors for a pathway. From what you wrote, you have no “hope“ going on. You didn’t mention your age so my recommendations might not be that appropriate, however, I have visited pain management,, kinesiology, doctors, rehabilitation doctors, PT, and rehab. I have done acupuncture, (chiropractic I don’t recommend.) Botox, and every other modality. The things I found most effective are trying to rebuild the structure to my body, which for me at 68 means taking bioidentical hormone replacement and the bone medication’s for a few years. If you are not in motion or active, your body is just gonna atrophy as well as degenerate. So you’re gonna have to talk to a few doctors and get a plan that can keep your circulation going or you’re gonna have more necrosis. In the meantime, I recommend MFR. I pay out of my pocket as well as use what Medicare will cover and I like the local guy who doesn’t take insurance best. He helps breakdown the myofascial muscles fascia which is glued together, and I have more movement and less pain and my body is more usable. I go twice a month and it’s been almost a year and although it’s very painful for me, I find that it’s really working and I am much more mobile.. The inner workings of my body get much more circulation and toxins are expelled better. I get the impression I am going to be doing this for the rest of my life (I’m 68) I’ve had two total hip replacement lumbar fusion and two cervical fusion with rods, but I am really active with all of that. And I push my doctors as hard as I possibly can to make them work for me so I can be my best. I wish you good luck because I know you’re in a difficult situation.

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I am 63 it’s my autoimmune diseases keep my hips inflamed. It is attacking the muscle and joints.I had my right hip injected today will take a couple of days to be able to walk.
I have three autoimmune disorders attacking my body.

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@dannyandebbie

My wife had Total bilateral hip replacement and 4 revisions thereafter! Really focus on your body. If you attempt a movement and it doesn’t feel right, stop! My wife had surgery through her backside area as well as through the groin. For a period of time there were restrictions after going through the backside due to fear of hip popping out of socket. Again, my wife says, do what feels right to you; it’s your body and no one knows it better than you!

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I've had 1 revision since the original surgeries, on both hips. But, the revision has popped out twice now, but I got it to pop back in. My ortho told me I'd need a hip specialist if this continues to happen. Is that what y'all had to do?

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I had a friend that this happened to twice, he ended up going back to his primary orthopedic surgeon and had yet another revision and is doing well 4 years out!

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I have been through a variety of treatments for hip pain and am staring down the barrel for another surgery. From the sound of it, your body does have limits even if the doctor clears you. Do not overdo anything. (Speaking from experience, this will only make life harder.)

-Incorporating more rest and actually respecting my body's limitations helps me. (This can be so hard to respect if life is busy! Saying no to things can be difficult.)
-Also I recently tried medical massage, and the therapist worked on all the angry places, so I am sure regular visits will relieve those places. This type of treatment may be helpful for you because tight and/or spasming muscles can hold joints out of place or impede nerves.
-Another thing that I have found helpful is icing; after my first surgery, I had an ice machine for my hip, and I found that to be more effective than pain killers. I keep large flexible ice packs now in my freezer. Ice machines, or the newer versions, can either be rented by the week or purchased outright.
-I also do hot baths.

I have been avoiding daily NSAIDs, injections, etc because I am wary of organ-related complications.

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@derrsk11

I have been through a variety of treatments for hip pain and am staring down the barrel for another surgery. From the sound of it, your body does have limits even if the doctor clears you. Do not overdo anything. (Speaking from experience, this will only make life harder.)

-Incorporating more rest and actually respecting my body's limitations helps me. (This can be so hard to respect if life is busy! Saying no to things can be difficult.)
-Also I recently tried medical massage, and the therapist worked on all the angry places, so I am sure regular visits will relieve those places. This type of treatment may be helpful for you because tight and/or spasming muscles can hold joints out of place or impede nerves.
-Another thing that I have found helpful is icing; after my first surgery, I had an ice machine for my hip, and I found that to be more effective than pain killers. I keep large flexible ice packs now in my freezer. Ice machines, or the newer versions, can either be rented by the week or purchased outright.
-I also do hot baths.

I have been avoiding daily NSAIDs, injections, etc because I am wary of organ-related complications.

Jump to this post

I should clarify that I previously did injections, physical therapy, acupuncture, etc.

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