Benign paroxysmal positional vertigo

Posted by larryg333 @larryg333, Dec 29, 2020

Believe from my symptoms that I've got BPPV. When I turn my head to the right side in bed, the room appears to spin and lasts a few seconds (less than 10 seconds). Also experience the same symptom with certain head movements (eg, looking down or up while standing).

Has anyone else in the group been diagnosed with BPPV? Has anyone corrected the prob by using the series of maneuvers at the link below, or other similar maneuvers?
https://www.google.com/search?q=bppv&rlz=1C1GCEA_enUS933US933&oq=bppv&aqs=chrome..69i57j0i433l2j0j0i433j0i395j0i131i395i433j0i395.3325j1j15&sourceid=chrome&ie=UTF-8#kpvalbx=_uFPrX_nRL6uyggfS7rewCg7
Thank you.

/LarryG333

@tootstilbury

Tootsbury……l believe that is my name for this Site…..I have been a member for about a year but never sent a message. BUT finally my Catagory Has Come Up. I'll try to be Short….about 5 years ago (now 85) I started getting strange feelings on top of my head, it progressed to slight dizziness…Dr had no "clue". Had MRI …Normal….dizziness Increased….year later another MRI…Normal….no Neurologist where I lived so moved to larger City different Province in Canada. Saw Neurologist,another MRI..normal!!! Dizziness now sometimes Extreme ….All SENSATIONS NOW ON RIGHT SIDE of Head Now Pain Extends down side of head to right Ear and Jaw…….Neurologist Gave me Prednisone…woke up @ 3 am with EXTREME Pain from Top of Head to right foot….now take no meds….HELP NEEDED

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Hi, Toots. Thank you for sharing your story.

So sorry to hear that, after all this time, you're still experiencing these painful sensations.

Does the pain begin at the head, then travel throughout your torso to / through your right leg and to the foot? Puzzling symptoms!

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@larryg333

Hi, Toots. Thank you for sharing your story.

So sorry to hear that, after all this time, you're still experiencing these painful sensations.

Does the pain begin at the head, then travel throughout your torso to / through your right leg and to the foot? Puzzling symptoms!

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Thanks for the question….the pain from my head to my toe was from taking Prednisone!! The pain lately is from top of head,right side to ear and into my jaw, if standing… very dizzy also so at 85 I spend most of the time on my bed where I am safe so I'm missing a lot of activities in this Seniors
Residence. Trying to find a Doctor to help but here in Canada although we don't pay for Doctors we
Sure Have to WAIT………..

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Hey there, Toots.

Just taking a stab here: This latest description of your pain just may be TN related. Hope you get to see the doc soon, and perhaps he can do a proper work-up that pinpoints the root cause of your symptoms.

Good luck… and HNY!

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I have not corrected the condition, but I haven't connected with anyone else who has this particular issue before. It brings me to tears. I'm not the only one.

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Hello and Welcome to Mayo Connect. We are a community of people living with a wide variety of diseases and conditions, who share our stories and try to help one another in our journeys. We are not medical professionals, so we don't provide medical advice. However we do willingly share what has worked or not worked for us as individuals, make suggestions about how to be an active participant in your own care, and provide a group of people who understand what you are going through. If you read this thread, you will see I have had an intermittent case of BPPV for many years, and in just the past 3 years I have learned a working strategy for living with it.

Can you tell us a little about yourself, and your experience with BPPV?
Sue

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Hi, folks. I posted a recent update to my status (now BPPV-free), but I don't see that post.

Happy to report that my symptoms have gone bye-bye. Was about to follow through with the Epley maneuvers this past weekend, but then experienced three consecutive days without the spinning.

So… my symptoms left in the same manner they arrived… no apparent involvement from moi! Not complaining.

Thank you all for your caring, and sharing of info… and your assistance.

HNY to all… health and happiness!

/LarryG

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@larryg333-Great to hear. The body is amazing and complex at the same time. I like your “wait and see” approach. Because ultimately it is our mind that connects to the body for most healing. Best to stay away from allowing others to intervene on that great innate system when you can. Where the mind goes, the energy flows.
Take care!

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@sueinmn

Hi Larry – the problem you describe does sound like BPPV. I have had it for many years, and regularly use the Epley maneuver to get over (or sometimes prevent) a spell of vertigo. It is very helpful to watch a you Tube or have a therapist guide you through the maneuver a few times to make sure you have it right.
When I get an episode, or feel one coming, I immediately do the Epley, then repeat it ay bedtime and in the morning for 2 days after dizziness is gone. If the Epley maneuver doesn't help, you may need to see an ENT for further diagnosis.
Letus know if it helps.
Sue

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Hi, I had a couple of episodes of BPPV. It was scary but I was relieved to be told that it rarely represents a major medical problem, (whether this was correct or not). I was also told that it can be related to vitamin d deficiency. I didn't pay attention at the time but later when treated for osteopenia I started taking calcium and a low dose (400 units) Vit D. Since then the BPPV has not returned. It might be worth checking Vitamin D levels and supplementing if that is indicated.

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@bride

Hi, I had a couple of episodes of BPPV. It was scary but I was relieved to be told that it rarely represents a major medical problem, (whether this was correct or not). I was also told that it can be related to vitamin d deficiency. I didn't pay attention at the time but later when treated for osteopenia I started taking calcium and a low dose (400 units) Vit D. Since then the BPPV has not returned. It might be worth checking Vitamin D levels and supplementing if that is indicated.

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Good morning, Bride. Wanted to follow up briefly on your recent post re: Vitamin D.

As you're likely aware, I too had a little bout of BPPV earlier this year. Since I've been supplementing with D3 for the past eight years (4-6K IU daily)… and I'm active several times a week outside (live in FL)… and eat a well-balanced diet, I thought it'd be useful to share this info. Also, the couple of times I've had my D3 level checked through the years, it's never been deficient.

The above leads me to conclude that there are other causes for BPPV, while in certain instances, low D may play a part.

Cheers!

/L

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Hello everyone
I was curious if anyone began suffering from vertigo following surgery? I broke my ankle and had surgery Dec 31. Vertigo began around Jan 3rd. A neurologist friend thinks it may have developed due to the positioning of my head while under anesthesia. (3 hr surgery). My vertigo is not terrible, no spinning sensation, just a wooziness feeling & unsteady feeling as if on a boat. I am hoping once I am off crutches & walking, this will go away. (Have had this off balance feeling for 50 days now.). No nausea, no headaches etc., i can drive, but I have not done anything physical due to my ankle healing & being on crutches. I did try the Epley maneuver 3 times with a PT but got zero relief. My neurologist friend says the dislodged calcium crystals might be in a different inner ear canal that requires another maneuver, not Epley. Has anyone gotten vertigo post surgery? Its too much of a coincidence. Thanks very much!

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Hi, sorry not quite an answer but just been told I may have bppv over the phone as cannot see any ent doctor in person. Years on and off of tinnitus and getting worse or rather more constant; not a person to get dizzy; have a laundry list of other illnesses: last Saturday am awoke and culdnt hear, the dizziness was sudden and not swirly or twisty but like my brain and inside head being jumped on or pressure or twisted and the double vision: well I am used to occasional double vision as on eye drops, glaucoma etc., but this was as if eyes were out of my control and each eye seeing something different. I crawled on floor to husbands room, had two attacks lasting a minute or so, but that was enough, then emerge and had one there. Doctor ruled out stroke etc. and said take Tylenol. That;s it that's all. So just hung up from an online doctor who doesnt think its tinnitus but sending me a pamphlet on bppv and said check internet.
Re your episode after surgery; I did spend last few nights with heated rice bag around my ear and right side of neck as had tooth extracted and so sore also sore throat; so could my neck have been in odd position as I slept… as yours was… also spent over an hour in dentist chair week before with head slightly tilted towards dentist… so last 2 nights slept on my back and may never sleep on my side again!!!! Horrible experience, would rather have another baby than another one of these attacks!!! J.

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