Benign fasciculation syndrome (BFS)
Not sure if this is the right place to ask this, but I'm really not sure how to interpret what's going on. I'm 40, have had random twitches now and then around my body for a few years and ignored them. Mentioned it to my Doctor last year during my annual routine health check and she said it's likely just stress and ignore it. Got sick a month ago, high fever, headache, dizziness, chills, and near constant twitching in different spots all over my body. My knees were going crazy and my biceps were twitching, I felt like my body was malfunctioning. I was also itching all over and my extremities were aching, especially in my feet and hands, but when I pressed or touched my feet or hands, there was no pain spot.
Two weeks after I got referred to a Neurologist who checked my strength, did not do any EMG or MRI, no other tests, just testing if I could physically push back or feel anything below my knees and past my elbows. He laughed and said I have benign muscular fasciculation syndrome and gave me some Xanax. I went for a second opinion and got the same diagnosis, benign muscular fasciculation, and was asked to return after a few months to check on me. The twitching is not as constant as before, but it's still happening, arms, lower and upper legs, knees, neck, shoulder, chest, they last a few seconds and stop. I can't sleep, the itching and the twitching wakes me up at night. The twitching does not go away when I move the muscle, it keeps twitching. Has anyone else ever had anything like this? If so, how or did it resolve?
Interested in more discussions like this? Go to the Brain & Nervous System Support Group.
If u have had a brain MRI and nerve conduction studies that were normal its not als. Those would be abnormal. Weird, but I started taking a pinch of celtic salt by mouth once a day then drinking a glass of water after and it has tremendously reduced them. Celtic salt is mineral salt. Look it up . Starting to think its an electrolyte imbalance. And for you your colon holds alot of that, that the body needs and u just had a major surgery.
I also was very concerned that I had ALS. I have non stop fasciculations (twitching) in my legs and less frequent in other various spots. I already have a neurologist due to other problems so my PCP recommended seeing him. He did lots of tests and lab work and was unable to find the cause so he ordered extensive EMG testing which was just completed this past Tuesday. Yesterday he told me that I don't have ALS. This means that it is probably just BFS. What a relief!
Trust your doctor and don't worry. I know how stressful it is after going through this for several months.