Benign carcinoid tumor in bronchi tube

Posted by jessie1990 @jessie1990, Oct 30, 2025

Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

jessie1990 | @jessie1990 | Nov 8, 2025

In reply to @tomrennie "@jessie1990 If you believe it will, then it will." + (show)

@tomrennie thank you 😊

jessie1990 | @jessie1990 | Nov 10, 2025

Hi guys is it normal to have lung pain wit typical carcinoid

jessie1990 | @jessie1990 | Nov 10, 2025

These are my 4 fur babies 🥰

Zebra | @californiazebra | Nov 10, 2025

In reply to @jessie1990 "These are my 4 fur babies 🥰" + (show)

@jessie1990
I love your fur babies! So cute!!!

As for pain, if it’s anything new I would mention it to your nurse contact. You definitely don’t want pneumonia again if the blockage caused that before.

I don’t have any ongoing lung pain. Once in a while I have a pain that seems like it’s in my lung, but I have a few other medical issues that could be causing the pain though so I’m never really sure what it’s from. It’s always transient though.

Turkey, Volunteer Mentor | @tomrennie | Nov 10, 2025

In reply to @jessie1990 "These are my 4 fur babies 🥰" + (show)

@jessie1990 So cute. The one white one looks like a soft pillow.

nannybb | @nannybb | Nov 10, 2025

In reply to @jessie1990 "@nannybb I was asking where ye guys were from but your name wasn't tagged properly 🤣" + (show)

@jessie1990 Oh...lol I'm from a small town just a few miles from Portland. Oregon. It's called Happy Valley. Tag, your it.... Or did everyone already report their location?

jessie1990 | @jessie1990 | Nov 11, 2025

In reply to @nannybb "@jessie1990 Oh...lol I'm from a small town just a few miles from Portland. Oregon. It's called..." + (show)

@nannybb I'm from Ireland 😊cork city

jessie1990 | @jessie1990 | Nov 11, 2025

In reply to @tomrennie "@jessie1990 So cute. The one white one looks like a soft pillow." + (show)

@tomrennie that's pola she's got lot bigger now

jessie1990 | @jessie1990 | Nov 11, 2025

In reply to @californiazebra "@jessie1990 I love your fur babies! So cute!!! As for pain, if it’s anything new I..." + (show)

@californiazebra I've mentioned it before they said I possible its over my partial callapse the end of my lung is callapsed

nannybb | @nannybb | Nov 11, 2025

In reply to @jessie1990 "@nannybb I'm from Ireland 😊cork city" + (show)

@jessie1990 Wow. My son was in Ireland 2 months (?) ago. He went with a friend who is going completely blind, hoping he could "see" and experience Ireland before that happens. People like that, put what I am going through into perspective for sure.