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Benign carcinoid tumor in bronchi tube

Posted by jessie1990 @jessie1990, Oct 30, 2025

Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx

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Turkey, Volunteer Mentor | @tomrennie | Nov 6, 2025
In reply to @californiazebra "@tomrennie That is an excellent philosophy and well written. I agree with all of it. Like..." + (show)
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@tomrennie
That is an excellent philosophy and well written. I agree with all of it. Like you, I don’t believe cancer defines me. I’m just someone who happens to have a couple kinds of cancer. We only get one life and I intend to keep living it. Medical stuff takes up more time than I would like, but that’s just the new normal and I make the most of the time in between. I did not do chemo so I was spared that experience, but I went through it with both of my brothers so I know how challenging that was. They were both good examples of doing the best you can with it all, enjoying any moments you can and trying to make it easy on those around you. Thanks for sharing your thoughts. You’re a trooper.

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@californiazebra Thank you. I enjoy being alive. It is worth fighting for.

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Turkey, Volunteer Mentor | @tomrennie | Nov 6, 2025
In reply to @nannybb "@tomrennie Oh my gosh. I LOVE this picture. Is he a lap dog? 🤭" + (show)
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@tomrennie Oh my gosh. I LOVE this picture. Is he a lap dog? 🤭

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@nannybb He tries to be. He also likes to cuddle up next to you to sleep. He is the softest blanket ever.

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Turkey, Volunteer Mentor | @tomrennie | Nov 6, 2025
In reply to @nannybb "@tomrennie All that you said was very well written. Two of the points especially hit home...." + (show)
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@tomrennie All that you said was very well written. Two of the points especially hit home. Like I said earlier. I have not allowed myself to to cry. I didn't want anyone seeing me do so. Reading your post, I think the tears came before I even realized it. This whole cancer experience has brought up a lot of past memories I went through with my mother who had breast cancer. I cried alot back then. But, as you said it is different viewed from the perspective of it happening to another.
The other thing you mentioned was children having cancer. I have worked with children as a ECE teacher and a professional nanny for over 30 years. I have a closet full of toys I really want to be using again. I also have a medical background. Bottom line, I've spent most of my life caring for others. Working in a NICU was suggested to me by a friend. That still is an option. But working with children having cancer really touched me. Excellent idea. As for what you have experienced, I had a friend who was hospitalized with pancreatitis. She was in severe pain. I can't image having cancer of the pancreas, which is another reason I did not allow myself to cry. I have seen some suffering in clinical and hospital settings and it is so true, someone ALWAYS has something much worse. Thank you so much for your post. It was well thought out and expressed. You may have a book in you.

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@nannybb Thank you. I am glad it helped. Nothing like a good cry to help get some perspective. My little sister has down syndrome. I get up everyday with opportunities in life that she never had. What do I really have to complain about? She also taught me to help others in need especially kids. Go help the kids. You will learn more from them then you could ever possibly teach. Sounds like a rewarding experience for everyone involved.

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Turkey, Volunteer Mentor | @tomrennie | Nov 6, 2025
In reply to @jessie1990 "@tomrennie omg this post is so emosh 😭thank you so much" + (show)
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@tomrennie omg this post is so emosh 😭thank you so much

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@jessie1990 you are welcome. Hopefully you found something that can help you?

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nannybb | @nannybb | Nov 6, 2025

The person that suggested I work with babies is a nun. I work (when I get back to work) for a Catholic retirement/nursing environment. She is a go- getter with wonderful connections. I'm going to see if I can have lunch with her and pick her brains.

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nannybb | @nannybb | Nov 6, 2025
In reply to @tomrennie "@nannybb He tries to be. He also likes to cuddle up next to you to sleep...." + (show)
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@nannybb He tries to be. He also likes to cuddle up next to you to sleep. He is the softest blanket ever.

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@tomrennie That is something I really miss about Atticus. He was a Persian and also super soft. He would sleep near my head and later in the night move to my legs. He was a support animal, so I could even take him on trips via airplane. He was never a problem. Your handsome guy looks regal.

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nannybb | @nannybb | Nov 6, 2025

I had all of those tests pre-op plus a 24 hour urine sample. Maybe because I already had all of that done my doctor did not do any type of an actual surgery pre-op. Can you ask your doctor or his nursing staff is they will be running any other tests?

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nannybb | @nannybb | Nov 6, 2025
In reply to @jessie1990 "@tomrennie I don't no how to upload pics of mine 😊 he is gorgeous 🥰" + (show)
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@tomrennie I don't no how to upload pics of mine 😊 he is gorgeous 🥰

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@jessie1990 Me neither...lol I just tried, and it said the picture needed to be downsized. (Beyond my expertise).

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jessie1990 | @jessie1990 | Nov 6, 2025
In reply to @nannybb "I had all of those tests pre-op plus a 24 hour urine sample. Maybe because I..." + (show)
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I had all of those tests pre-op plus a 24 hour urine sample. Maybe because I already had all of that done my doctor did not do any type of an actual surgery pre-op. Can you ask your doctor or his nursing staff is they will be running any other tests?

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@nannybb like will I need another pet scan or anything like that I've had all them done already I've had 2 biopys also pet scan ct scan or is it just a case of bloods and urine sample ecg then surgery

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nannybb | @nannybb | Nov 6, 2025

Ask your doctors office, even if it is just by using MyChart to communicate. I was very disappointed with my surgeon (as I have mentioned in other posts) I have had several operations, and each time I had a pre-surgery work up (CBC if nothing else, and EKG) I'm getting the feeling they no longer do that since Covid. I could be wrong, but that was my experience. Are you comfortable with your doctor and his staff?

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