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Benign brain tumor in the front: I'm freaking out

Posted by leell58 @leell58, Feb 22 5:42pm

I'm so scared about this tumor! I'm having a second opinion this week with a different neurosurgeon. I'm freakin the fuck out and all I want to do it drink over it!

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yang2 | @yang2 | Mar 13 10:47pm
In reply to @dlc1953 "Good morning. Exactly 1 year ago I had my Meningioma removed at Univ. of Pa. I..." + (show)
@dlc1953

Good morning. Exactly 1 year ago I had my Meningioma removed at Univ. of Pa. I believe the size of it was 6 mm. It was found by mistake. We watched it until he thought that it would be time to take care of it. I had the Gamma Knife Procedure done. I went in at 6:30 and walked out at 3:30pm. It was painless and everything went well. I understand about you being scared, as I was also. Make sure that you find a really good Dr. no recovery really. Just a little slowing down a little. Good luck.

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@dlc1953 , thank you so much for sharing your experience. It helps a lot to read and to know some other people’s journey with brain tumour so I can calm down a little bit as I was freaking out! 😜 Now, I’m much braver!

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joetex | @joetex | Mar 14 11:19am

It is a big shock. I have a 4+ cm meningioma near my optic nerve that was found accidentally while I was in the hospital. My first response was to burst out crying! My neurologist told me it was benign and gamma knife radiation had a 90% chance of killing it. That’s what I did 1 1/2 years ago. Like others have said, find a good neurosurgeon. It’s normal to be upset about it but know that medical treatment is very advanced and effective. Best of luck to you. Try to get family or friends to support you too.

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cscmaryann | @cscmaryann | Mar 15 3:25pm
In reply to @thomhorowitz "My second opinion was to stay on TMZ for a full year. Primary thought 6 months..." + (show)
@thomhorowitz

My second opinion was to stay on TMZ for a full year. Primary thought 6 months was enough, but with second opinion Dr wit pts 7 years post op, I will stick out a few
More rounds of TMZ. Only issue is it drops
My platelets so no sharp knives when I cook

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What is TMZ, please?

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 23 1:56pm
In reply to @cscmaryann "What is TMZ, please?" + (show)
@cscmaryann

What is TMZ, please?

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@cscmaryann, I believe @thomhorowitz was referring to the chemotherapy drug Temozolomide, which is sometimes abbreviated as TMZ.

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