Barrett’s esophagus

Posted by jvanstratten @jvanstratten, Mar 22, 2018

Looking for info and help with Barret’s esophagus. I can’t figure out just how serious this is. I have read way too much online! I don’t really know how strict my diet really has to be. It is really stressful-. Does anyone here have it? And exactly how serious is it?

@hklet1941

I was diagnosed 1982 with Barretts along with acid reflux. I had an endoscopy every year until 2008 when my gastroenterologist now does it every 5 years. I take 40mg omneprazole, no diet and Barretts stable.

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You are lucky yours did not progress to low then high dysplasia. I have had six endoscopy I the past year. My throat is beginning to feel it. I hope I will be able to spread them out. 

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I know this discussion is from last spring — but I’d like to revive it if possible! I was diagnosed with Barrett’s esophagus about 20 years ago. My Prevacid dose has gradually increased over the years to 30mg twice a day. A couple of years ago low grade dysplasia was found. I’ve just had my 3rd radio frequency ablation last Friday. Today is Monday. Im wondering how long it taken others to get back to normal after ablation.

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@penny42

Barretts was found about 8 years ago. Endoscopies every 2-3 years. Do not like taking Nexium because worried about my bones and nutrition.

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I changed from omeprazole after 10 years to Pantaprozole which is not nexium. I don’t know whether there is much difference. I like this smaller pill better. Any comments in which is prescribed most and why?

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@pdilly

I know this discussion is from last spring — but I’d like to revive it if possible! I was diagnosed with Barrett’s esophagus about 20 years ago. My Prevacid dose has gradually increased over the years to 30mg twice a day. A couple of years ago low grade dysplasia was found. I’ve just had my 3rd radio frequency ablation last Friday. Today is Monday. Im wondering how long it taken others to get back to normal after ablation.

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@pdilly – I had Barretts esophagus before my Nissan fundoplication 25 years ago. I managed to get by without meds for years after my surgery. I didnt have any symptoms of reflux but they put me back on omeprazol prophylactically when i had a small hiatal hernia show up on some imaging, otherwise I imagine I wouldn't need it any more. They told me that Barretts can lead to cancer so they didn't want to take any chances it might return. Surgery is a great alternative to long term meds for some people. If you haven't discussed it with your doctor, you might consider it. Of course, your age and overall health will be a major factor in any decision about surgery.

Hope you feel well in the New Year!

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Thank you for sharing your story @konniehoover. I also had Nissen fundiplication about four years ago. Sadly it did not end my need to take Prevacid.
The surgeries I am having now are called radio frequency ablation. They are for sections of my Barrett’s esophagus that have developed low-grade dysplasia. I am hoping there is someone out there who sees this who has had radio frequency ablation who can tell me how long it took them to recover after the procedure. I hope you have a great new year!

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@pdilly

Thank you for sharing your story @konniehoover. I also had Nissen fundiplication about four years ago. Sadly it did not end my need to take Prevacid.
The surgeries I am having now are called radio frequency ablation. They are for sections of my Barrett’s esophagus that have developed low-grade dysplasia. I am hoping there is someone out there who sees this who has had radio frequency ablation who can tell me how long it took them to recover after the procedure. I hope you have a great new year!

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@pdilly i hope you find someone who has experience and good ideas for you. I'm having problems with that myself for a different problem. I was lucky to see a different specialist who looked at some recent records and discovered he had at least seen someone who had the same problem as me. At least I now know I'm on the right trail to finding answers.

Praying for you to find some relief. Have a safe, happy and healthy New Year!

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@pdilly RFA's are technically not a surgery but a procedure. I know, potato vs potatoe. Recovering after it depends on how large of an area treated. For me after 3 days I was able to swallow pretty much anything without pain. Now, if you are asking how long it takes to be rid of Barrett's after an RFA my understanding is that there is no firm answer since my Mayo Gastro MD tells me that some people are never rid of Barrett's and will require monitoring at least annually. Hope you have a Happy New Year!

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@konniehoover thank you again! I hope your new specialist keeps helping you ou your issues!

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Thank you @dandl48 — I wasn’t clear in my post! Sorry! I’m not really asking about when Barrett’s will be gone. I’ve had it for 20 years and will continue to have it since the ablation is only being done on those Barrett’s segments with low grade dysplasia — getting rid of them before they change to high grade dysplasia and cancer!

Thanks for sharing that you could easily swallow after 3 days without pain. I’ve actually been able to swallow the prescribed soft diet without much pain since the day of the ablation. I haven’t had to take any pain meds. But I have constant mild to moderate nausea. I’ve lost about 7 pounds since Friday morning because it’s hard to make myself eat. I took a teeny tiny zofran for nausea on Saturday and was knocked out for about 7 hours and hung over from it for another day!

Maybe this is just normal for some people after this ablation procedure/surgery?

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I've never been nauseous after my procedures. Could it be a reaction to the sedation? Probably just me but since you aren't eating much, I used to get nauseous when I went too long without eating.

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Good to know you’ve never had nausea after ablations. I wonder too if it’s just the way my body reacts after anesthesia. They say that the Michael Jackson/Prince drug combo given for anesthesia leaves your system quickly after the anesthesia is stopped. But apparently i experience a lingering side effect of nausea. Maybe when I wake up in 2019 tomorrow it will be gone! Or I will find an anti nausea drug that doesn’t knock me out!

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Hi @pdilly,

How are you feeling? Since you mentioned radio frequency ablation (RFA), I’d like to invite @grandmar @waterboy @hogan_g1937 to join in and share their insights about RFA. You might be interested in reading this discussion on Connect:
– Experience with Radio Frequency Ablation procedures? https://connect.mayoclinic.org/discussion/experience-with-radio-frequency-ablation-procedures/

I sincerely hope you’ve found much-needed relief from the nausea?

Liked by pdilly

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Thank you @kanaazpereira — it’s getting better finally! The procedure was one week ago today — I’ll let you know what my doc’s office says when I hear back from them!

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I was just diagnosed with early stage Barrett's esophagus after having a bleeding ulcer repaired via endoscope. This really scares me. I was put on protonix and told to eat a low acid diet. No fried foods, no candy, no soda, I've been eating baked chicken with no seasoning. I cut out all salt and most sugar. No booze too. So I've been told my esophagus lining is like a shag carpet. So now what is the treatment with no low or high grade dysphasia? I see my Dr. In March. I've been drinking 12. bottles of water a day. I stop eating 5 hrs before bed. Can this reversed?

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@riflemanz64 I’m sorry you’ve been diagnosed with Barrett’s. To answer your question, I think what you’re doing now is your treatment from now on — eating differently and taking protonix. They may also Have you raise the head of your bed about 6 inches.

In the 20 years since diagnosed, I’ve always been told that it can’t be reversed. So when I had my EDGs every 1 1/2 to 2 years I hoped my Barrett’s had not worsened — that it was the same. And that’s what happened for 18 years.

But then I developed segments with low grade dysplasia — thus the radio frequency ablation procedures now that I have a hard time bouncing back from.

I hope your Barrett’s never worsens. Take your meds and stick with your new eating plan.

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